2. Tarlov Cyst
3. Interviews

Cindy's interview

---

How did all start?

Tailbone pain

Do you already have a diagnosis? How long did it take you to get it?

Yes .. it took 6 months.. I was diagnosed Nov 2013

For what medical specialties have you been treated? What has been the most useful specialty for your?

None

What has been the most useful thing for you so far?

Just dealing with the pain and weakness

What have been your biggest difficulties?

Sleep, traveling and walking for more than 20 minutes

How has your social and family environment reacted? Have your social or family relationships changed?

Yes.. I'm not able to do everything I use to

What things have you stopped doing?

Travel, movies, hiking, bike rides and long walks

What do you think about the future?

Long road

So far, which years have been the best years in your life? What have you done during them?

Before the pain started

What would you like to do if you didn’t have your condition?

Traveling

If you had to describe your life in a sentence, what would it be?

Boring and lonely

Finally, what advice would you give to a person in a similar situation?

Stay off the meds

---