Story about Transverse myelitis .

I have transverse myelitis but it doesn't have me. ❤️

Feb 13, 2016

By: Kelly


My story begins in 2010 ,my autoimmune system decided to go on vacation.  I got one thing after another.  First interstitial cystitis, then tumors in my uterus, then adenomyosis to start.  All painful and frustrating.  So I ended up with bladder surgery, then a hysterectomy which obviously helped my uterus problems thank God.   Then I was still struggling with my IC.   Going and getting heparin instillation several times a week directly in my bladder to control the pain.  So once TM decides to join the party, my not being able to pee was blamed on my IC. I had a foley on and off.  I had horrible back and ankle pain then they had me cath myself.   Finally my urologist felt it was more and sent me for a MRI and that's when they found my lesions. I went to university of Penn and they diagnosed me and I spent 8 days not hardly able to walk, the pain in my legs and ankles and back was almost unbearable.  I received 5 bags of steroids and other meds.  Then 6 months later I returned for another 7 days in horrible pain where I just screamed out.  All the morphine did was confuse me.  The gabapentin was my greatest. It really helped.  I lost my job working with kids. Had to stop working with kids at my church. Couldn't be their chaperone.  I had to learn a new way to live be useful.  Then I realized I am worthy I am valued.  I have wonderful friends and kids.  The other thing I learned was that even though TM sucks, I still love my life, I still have my life. Maybe different then it was but thank God I am still here.  I have good days and bad days.  I am always grateful.   I mostly have my IC under control and I learned how to manage and learn my limitations of TM.   Praying for you all

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1 comment
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Thank you for sharing your story with us.  I Love the title.  I was diagnosed September 2015.  My life, like yours was flipped upside down.  I'm learning to live with My limitations but muy God it's difficult. Rather than accepting this is whay life looks like now I'm fighting tooth and nail.  Paying the price every day.  Anyway... Wanted to day Thank you for sharing your message.

Commented 6 years ago Jenn 10

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