Story about Transverse myelitis .

Transverse Myelitis

Feb 13, 2016


2009 my life change forever. I got off work sat down and noticed my left foot felt funny. No big deal. I was on my feet all night. In the morning the pain was up both legs. Day two up to my breast. Went to the ER. Doctor told me I to see a neurologists. To call my regular doctor in the morning. Next day my doctor did my first MRI. Found a mass in my spinal cord. Sent me to The U OF M. days in the hospital bring told I have this disease and that disease. The only thing they really could do was open my spinal cord up and see what was going on. After all that and more weeks and months and year later new doctor. One of best clinic in the world Mayo in Minnesota. I was told I have Transverse Myelitis. After fighting so long I finally had my  answer. The answer would only bring the truth there isn't anything we can do for you. Years of highly addictive drugs and not feeling any better. I accept myself no more medicine. I chose not give up hope. I will do my part to help anyone who has been affected by rare disease.  We are in this together. 

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2 comments
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Your story has some similarities to mine.  I went through all the drugs and narcotics, too, then gave up on them all.  How are you now?  Do you still go to Mayo Clinic?

Are you a member of our "Blue Crew"?

Nickee Randolph, Virginia

Commented 8 years ago Nickee Randolph 13
0

Yes I am. I have been treated for two transverse myelitis attacks at the Mayo.  And I have been a member of the TM community sents 2010. Great people. Going back to the Mayo next month. I am having trouble with pain in my head when I stand. Still living life to the fullest

Commented 8 years ago Kellie Horn 35

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