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What is the prevalence of Transverse myelitis?

How many people does Transverse myelitis affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Transverse myelitis

Transverse myelitis is a rare neurological disorder characterized by inflammation of the spinal cord. It affects approximately 1 to 8 individuals per million worldwide, making it a relatively uncommon condition. The prevalence varies across different populations and regions. Transverse myelitis can occur at any age, but it is more commonly diagnosed in young adults. It can be caused by various factors, including infections, autoimmune diseases, and other underlying conditions. Early recognition and prompt treatment are crucial for managing the symptoms and preventing long-term complications.



Transverse myelitis is a rare neurological disorder characterized by inflammation of the spinal cord. It affects people of all ages, but it is more commonly diagnosed in adults between the ages of 10 and 19 or 30 and 39. The exact prevalence of transverse myelitis is difficult to determine due to its rarity and the lack of comprehensive population-based studies. However, it is estimated that the annual incidence of transverse myelitis ranges from 1 to 8 cases per million people.


Transverse myelitis can occur as an isolated incident or as a symptom of an underlying condition such as multiple sclerosis, neuromyelitis optica, or viral infections. It can cause a wide range of symptoms including weakness, sensory disturbances, pain, and bladder or bowel dysfunction. The severity and duration of symptoms can vary greatly from person to person.


While transverse myelitis is considered a rare disorder, it is important to raise awareness about its existence and potential impact on individuals. Early diagnosis and prompt treatment are crucial for managing symptoms and preventing further damage to the spinal cord.


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18 answers
TM has a conservatively estimated incidence of between 1 and 8 new cases per million per year, or approximately 1400 new cases each year. Although this disease affects people of all ages, with a range of six months to 88 years, there are bimodal peaks between the ages of 10 to 19 years and 30 to 39 years.

Posted Aug 16, 2022 by Transverse Myelitis Folks Blue Crew
The epidemiology of TM depends on its underlying cause. The annual incidence of idiopathic complete TM is uncertain, but conservative estimates based on studies in US, European, and Israeli populations range from 1 to 4 cases per million, with a bimodal distribution of age presentation, peaking at ages 10 to 19 and 30 to 39 years. A population-based study estimated a mean annual incidence rate of 0.82 per 100,000 person-years, or 1.2 per 100,000 person-years for adults. Acute partial TM commonly heralds or accompanies multiple sclerosis (MS), which affects up to 0.3% of persons of Northern European ancestry. The pattern of longitudinally extensive TM is commonly associated with neuromyelitis optica spectrum disorders, which may account for approximately 1% of all CNS demyelinating disease in North American and European populations, a somewhat greater proportion of African-Americans and Hispanics, up to 30% in the Japanese population, and virtually all cases in ethnic or racial groups in which typical MS is virtually absent, such as aboriginal peoples of North America and black Africans. Onset may occur at any age. MS-associated cases typically occur between ages 20 and 50 years (median about 29 years) whereas the median onset age for neuromyelitis optica-related cases is about a decade later. There is a female predominance in all subtypes. These syndromes also affect children, although the incidence is unknown. The treatment of TM in children is usually the same as in adults.

Posted Jul 24, 2017 by Hagen 2730
1 to 8 cases per million per year

Posted Jul 25, 2017 by Mindy 2000
4.6 people in 1 million

Posted Jul 25, 2017 by Conrad 2200
It affects men, women and children of all ages. There is no age limit. Even infants can get TM.

Posted Aug 24, 2017 by Elizabeth 1200
My understanding is it is rare affecting only like 1400 people per year in the US. I believe it hits more young people than say those over 40. I believe it affects women more but I could be wrong.

Posted Oct 6, 2017 by Chuck 2000
Can affect anyone, any age, 4.6 in 1,000.000 people are affected, thats less than one in twoo hundred thousand.

Posted Nov 30, 2017 by mikado54mark 3150
Prevalence of Transverse Myelitis worldwide is around 1 in 5million ranging in age from infants to 80 years old. The peak age seems to be 10-19 and 30-39 makes and females in equal proportions.

Posted Feb 27, 2018 by Gill 1800
in the USA, about 1400 people are diagnosed with TM each year

Posted Jun 1, 2018 by Clay Garner 2500
I dont know the exact numbers but I did read there are less than 2000 cases reported per yer.

Posted Jun 1, 2021 by Gary 3550
TM has a conservatively estimated incidence of between 1 and 8 new cases per million per year, or approximately 1400 new cases each year. Although this disease affects people of all ages, with a range of six months to 88 years, there are bimodal peaks between the ages of 10 to 19 years and 30 to 39 years.

Posted Aug 17, 2022 by Kevin Weilacher 3420
Transverse Myelitis is a rare neuroimmune condition.

Posted Aug 17, 2022 by gloria_kazan 7450
Translated from spanish Improve translation
I have an idea that 1 in a million.

Posted May 29, 2017 by Adriana E. 2000
Translated from spanish Improve translation
Affects more older than 30 years without distinguishing sex; very few cases in children up to 10 years and less under that age. I have a daughter that is 5 years old, he was diagnosed with a transverse trasversa at the cervical level high, affecting the C2 to D2. This is why it is very difficult to find out more about it.

Posted May 29, 2017 by Leandro 2200
Translated from spanish Improve translation
It is said that approximately 1/1000000

Posted Aug 8, 2017 by Dani 2000
Translated from spanish Improve translation
More children than adults.

Posted Sep 14, 2017 by Franci 2000
Translated from spanish Improve translation
The acute transverse myelitis is inflammation that affects the spinal cord in its entire width (transversely), thereby blocking the transmission of nerve impulses that enter or leave the spinal cord. It affects more women between the ages of 30 to 55 years old

Posted Nov 8, 2017 by Lorena 3050

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TRANSVERSE MYELITIS STORIES
Transverse myelitis stories
Went to the chiropractor with neck pain and the following morning had dizzy spells. Chiropractor suggested an MRI and when the results came back, he suggested to see a neurologist...I was admitted to the hospital that same evening. Went through every...
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I was 11 years old when I had my onset. I was diagnosed with TM and Guillian Barre Syndrome (GBS). 
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It was a normal day, I was running late to work. I work nights as an RN in the ICU. I ran to the kitchen to shove some speghetti in my mouth before running out the door. All of a sudden my left thigh felt cold and numb. My hubby says oh that happens ...
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My story begins in 2010 ,my autoimmune system decided to go on vacation.  I got one thing after another.  First interstitial cystitis, then tumors in my uterus, then adenomyosis to start.  All painful and frustrating.  So I ended up with bladder ...
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2009 my life change forever. I got off work sat down and noticed my left foot felt funny. No big deal. I was on my feet all night. In the morning the pain was up both legs. Day two up to my breast. Went to the ER. Doctor told me I to see a neurologis...

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