Can people with Tuberous Sclerosis work? What kind of work can they perform?
See how people with experience in Tuberous Sclerosis give their opinion about whether people with Tuberous Sclerosis can work and what kind of jobs are more appropriated for people with Tuberous Sclerosis
Can people with Tuberous Sclerosis work?
Tuberous Sclerosis (TS) is a rare genetic disorder that causes the growth of noncancerous tumors in various organs of the body. These tumors can affect the brain, kidneys, heart, lungs, skin, and other organs. The severity and symptoms of TS can vary widely among individuals, so the ability to work will depend on the specific challenges faced by each person.
While TS can present significant medical and developmental challenges, many individuals with this condition are capable of working and leading fulfilling professional lives. The ability to work will depend on several factors, including the severity of symptoms, the presence of associated conditions, and the individual's overall health and cognitive abilities.
What kind of work can people with Tuberous Sclerosis perform?
The type of work that individuals with TS can perform will vary depending on their unique abilities, skills, and limitations. It is important to recognize that people with TS have diverse talents and capabilities, and their potential for employment should not be underestimated.
Here are some considerations regarding the types of work that individuals with TS may be able to perform:
- Office-based jobs: Many individuals with TS have average or above-average intelligence and can excel in office-based jobs that require cognitive skills. These may include administrative roles, data entry, customer service, bookkeeping, or other tasks that do not involve physical labor.
- Computer-related jobs: People with TS often have excellent attention to detail and can thrive in computer-related fields. They may pursue careers in programming, software development, graphic design, or IT support.
- Artistic and creative fields: Some individuals with TS have a strong artistic inclination and may excel in creative fields such as painting, sculpting, writing, or music. These individuals can channel their unique perspectives and creativity into successful careers.
- Entrepreneurship: Many individuals with TS possess determination, resilience, and a strong work ethic. These qualities can make them well-suited for entrepreneurship, where they can create their own opportunities and tailor their work environment to accommodate their specific needs.
- Advocacy and support roles: Individuals with TS may choose to work in roles that involve supporting and advocating for others with disabilities. They can contribute to organizations focused on disability rights, healthcare, or education, using their personal experiences to make a positive impact.
It is important to note that some individuals with TS may face challenges related to cognitive impairments, behavioral issues, or physical limitations. These factors may impact the type of work they can perform or require workplace accommodations to ensure their success.
Workplace accommodations for individuals with Tuberous Sclerosis:
Employers should be aware of the potential challenges faced by individuals with TS and be willing to provide reasonable accommodations to support their employment. Some possible accommodations include:
- Flexible work schedules: Individuals with TS may benefit from flexible work hours to accommodate medical appointments or manage fatigue.
- Modifications to the work environment: Adjustments such as noise reduction, ergonomic furniture, or designated quiet areas can help individuals with TS focus and minimize sensory overload.
- Assistive technology: Providing assistive devices or software can help individuals with TS overcome specific challenges related to communication, organization, or information processing.
- Job coaching and support: Some individuals with TS may benefit from additional support or job coaching to help them navigate workplace challenges and maximize their potential.
- Education and awareness: Employers can promote education and awareness about TS among their staff to foster a supportive and inclusive work environment.
Conclusion:
People with Tuberous Sclerosis can indeed work and contribute to the workforce in various capacities. The specific type of work they can perform will depend on their individual abilities, skills, and limitations. With appropriate accommodations and support, individuals with TS can lead fulfilling professional lives and make valuable contributions to their chosen fields.
Posted Apr 2, 2019 by Marocas 870
Posted Jun 17, 2020 by Nick Fn Blum 2640
People who have neurological disorders, may ask for the status of disabled worker (RQTH : Reconnaissance of the Quality of a Disabled Worker). Epilepsy, if it is not stabilized, may be inconsistent with the professions requiring a driver's licence, working at heights, use of dangerous machinery or working around the chain. An opinion from a neurologist is required.
Other people, the fact of a deficit too large, will not be able to integrate into the world of regular work. Some exercise a paid professional activity in an Establishment Specialized Assistance by Work (ESAT).
For people who have a severe disability, a professional activity can not be considered : they can then be accommodated in households of life or Centres of Activity Day (CAJ), where they participate in physical activities, artistic and cultural.
In France, within each department, the services are provided for the social and vocational integration of adults with disabilities. Others support the adaptation of workplaces in accordance with the doctor's work. These adaptations are carried out by ergonomists. The Association of Management of the Fund for the Vocational Integration of People with Disabilities (AGEFIPH), the private sector, and the Fund for the Integration of Persons with Disabilities in the Public Service (FIPHFP), for the public sector, are specialized organizations that aim to help people with disabilities and their employers to succeed in their insertion in the professional life.
Posted Apr 7, 2017 by Guillaume 1085
Posted Sep 19, 2017 by claudia 2020
Posted Oct 3, 2017 by PAOLA 2500
Posted Oct 11, 2017 by RolenMan 3120
