Story about Waldenstrom Macroglobulinemia .

Waldenstroems

Dec 12, 2015

By: Karen


My husband was diagnosed with WM in mid 2014. He has been in the watchful waiting mode. At his last onc appointment he has been told he needs to start treatment. He has been trying to heal his body with nutrition and supplements and is terrified of chemo knowing it destroys all cells. In the body, good and bad. If anyone can share their experiences with us we would be greatful.

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Hi Karen,

i have been diagnosed with WM just recently in December 2015 and seeking treatment from the hospital specialist 

i am still coming to terms with it, I am happy to share my treatment as I have had Plasma exchange and now on a clinical trial with oral and IV treatment.there is always treatment and hope!!!!!!

if you don't mind me asking how is your husband with WM and what symptons if any and treatment is he having ?

i have also joined the WM face book page as well as just added myself on WM maps page to find me just click on Sydney I'm 5O 

look forward to your response as its very hard to find people with WM to share there story.

But it's good to here from other people WM and what there dealing with to share I think.

regards 

David 

Commented 8 years ago David 10

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