Consultant in United Kingdom?

hi, i live in  Vancouver Canada.  I'm 13th months out from my stroke.  the best forum I've found is on Facebook .

WALLENBERGS Syndrome or lateral medullary Syndrome group . please join . there are people from all over the world you are in a group of stroke that is so rare the doctors only no so much. this group has helped me so much. hope to see you add your name. 

I’m in the Lateral Medullary Syndrome FB group and it has been an excellent resource for both medical and anecdotal information. 

Hi Tina,  there is very little information out there, please join the group suggested above.  We have over 300 people world wide now and 1 was number 11 in the group when I joined five years ago.  The stroke we have suffered is very rare indeed and even some of the most experienced Neurologists have never seen a ‘live’ patient. 

Collectively as a group we have a lot of information and are more like a family.  I personally have made good friends and met three of our group members.  The support I have received is amazing. I’m doing very well now and always happy to share my experiences.  

I look forward to seeing your name come up. 

Liz (New Zealand)

It’s interesting to read it’s so rare. I can only say the neurologists I’ve met have no social skills in helping you through a very difficult experience. I feel time is making slow progress but there is no healthcare system that is helping me. It’s just trying to stay positive and active. I’d love to meet up with others in our situation as I don’t thing anybody else is qualified to understand.