Stories of Wolff-Parkinson-White syndrome

STORY
Wolff-Parkinson-White syndrome stories
I was born in 2014 at 26 weeks weighing 630g.  I had 1 episode of SVT and diagnosed with WPW in August 2014 and have been on propranolol ever since.  If anyone can help my mummy and daddy understand this disease better and what it's like l...
Wolff-Parkinson-White syndrome stories
born with severe EA and no surgical intervention to date. Suffered stroke in 2012from uncloused PFO; Helex repair to prevent future strokes. Fortunate enough to have survived this long; daughter born in 2014 with same Ebstein severity (no surgery to ...
Wolff-Parkinson-White syndrome stories
One day i was going to college when my heart started beating too fast. I didn't understand anything and I was terrified. I went to a clinic, they diagnosed  me to tell me that I was born with a very rare syndrome, and it's going to affect m...
Wolff-Parkinson-White syndrome stories
I had no idea that i had wpw until i woke up in hospital and was told that I had it . I had 2 massive heart attacks apparently died twice got put into a coma while I was in the coma i was given a 10% chance that i would come out of it. They said if ...

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Statistics of Wolff-Parkinson-White syndrome

13 people with Wolff-Parkinson-White syndrome have taken the SF36 survey. Mean of Wolff-Parkinson-White syndrome is 1997 points (55 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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