做问卷调查 Alagille综合征（先天性肝内胆管发育不良征） - Alagille综合征（先天性肝内胆管发育不良征） - 地图

开始患病的年份

1. Are you working?

是不

2. Are you able to work?

是不

3. Are you on treatment?

是不

4. Can you lead normal life?

是不

5. Do you suffer from any other disease?

是不

6. Signs and symptoms

Jaundice

Eye spots

Xanthelasmas

Facial disorders: hypertelorism, pointed chin and broad forehead

Bone disorders such as butterfly-shaped vertebrae.

Fatigue

Others

7. Do you feel better or worse than one year ago?

更好更坏的类似的

8. How much money do you think have you spent on your illnes?

出生日期

女性男性

其他评论

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的调查 Alagille综合征（先天性肝内胆管发育不良征）