Adam Meyer, male, born 31/12/1981 lives in Chicago, USA. His Mum had Ribbings Disease. I'm not certain when he was diagnosed, but is very sore this winter.
Emily, female, aged 16, lives in Sydney, Australia (Asian descent). She is struggling with pain too, but came 1st in her year for English, Congratulations!
I do as much as I can on days I'm well, & compromise the days I can't. My biggest struggle is not going to a special event then feeling isolated, guilty, upset & frustrated.