- Cogan syndrome
- Interviews
kimmorken's interview
How did all start?
With fogginess in my eyes.
Do you already have a diagnosis? How long did it take you to get it?
Had diagnosis within a week.
For what medical specialties have you been treated? What has been the most useful specialty for your?
optometrist/eye glasses
audiologist/hearing aides
What has been the most useful thing for you so far?
glasses & hearing aides
What have been your biggest difficulties?
finding a doctor that knows about the syndrome
How has your social and family environment reacted? Have your social or family relationships changed?
Only big issue is having to tell people to speak louder. Now that people are wearing masks I realize how much I read lips.
What things have you stopped doing?
Not much other than because of covid-19...don't do much for fear of contracting covid-19 again.
What do you think about the future?
Unsure...anxious
So far, which years have been the best years in your life? What have you done during them?
Raising my son and rescuing animals.
What would you like to do if you didn’t have your condition?
Shoot more pool.
If you had to describe your life in a sentence, what would it be?
Complicated and never a dull moment.
Finally, what advice would you give to a person in a similar situation?
Look for a physician that cares enough to research what's best for you physically and mentally.
