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Cryopyrin-associated periodic syndrome
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Cryopyrin-associated periodic syndrome
Advice
Advice of Cryopyrin-associated periodic syndrome
Ilaris
by Adrienne
Daily Anakinra
by Davidson
Currently taking Kineret (for FCAS). Would like to explore the other drugs available.
by Jeni
Ilaris inyección
by Antonio José
Anakinra
by I Ayres
Ilaris worked amazingly. 2 months without pain or rash for just one shot.
by Tim Pearce
Heated mattress pad in the winter
by Adrienne
I've found that air conditioning causes a more severe flair than cold weather (for me personally).
by Jeni
Mejoria en todos los sentidos
by Antonio José
Avoid Air-con (worse than cold weather) and excessive tiredness - or sitting still in a cool place
by Tim Pearce
In addition to medication I'm learning other ways to reduce inflammation in the body (diet, exersice, etc).
by Jeni
Segunda oportunidad de vivir
by Antonio José
Support from my immediate family
by Tim Pearce