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Marfan Syndrome
Advice
Advice of Marfan Syndrome
Regular intake of magnesium, soothing massages with "sombra" when the dual ectasia is really bad
by Lu
parent
by Christian Larsen
Having a great support network to rely on
by Vaughnie
My attitude! I cannot change what I have, and what's going to still happen. But I refuse to be depressed about it.
by Yolande Buitendag
Meditation & mindfulness practice
by Ameigh
having people who understand
by crystal
Daily walk to the mailbox and back. Equals about 1/4 mile.
by Jesse
Healthy lifestyle - good diet, reasonably active, etc
by Ewe Lin Loo
Bentall's operation
by Rosemary Latto
I've started walking every day to combat the pain in my knees. I can barely feel it anymore
by Kye Wall
Getting off Atenalol, when cardiologist said aorta isn't dialating (it made me tired and depressed)
by Jenny
Cannabis has helped nearly all the conditions I have associated with Marfan. I wish I had discovered it in my late teens rather than my late twenties.
by Carly
Sleeping does really make me feel better
by Debbie
Easy walk each day
by S Roby
I take Welbutrin to counter the exhausting side effects of the Atenolol.
by Jean
Having a positive attitude.
by Karen Brooks
prednisone
by
Sleep ;)
by Rikke
Staying positive and not dwelling on all the bad things that maybe can happen to me.
by Rensha
I take magnesium - mablet- helps a lot
by Birgit Ottilie Madsen
no exceder con los deportes
by Luis Mora
I survived a major stroke.
by Lesley Harl
My Friends &nd Family give me energy
by Steven
Turmeric
by Esmeralda
My 1st hip replacement. Finally walking again..
by revathi
Daily intake of magnesium reduces migraines
by Lu
Always stay positive
by Amalia
Cut out foods that cause inflammation out of my diet.
by Terese Galvin
Most importantly, don't let just anyone operate on your Tarlov Cyst ONLY A TARLOV CYST SPECIALIST (DR. FEIGENBAUM IN DALLAS TEXAS IS ONE OF THE BEST IF NOT THE BEST) Unfortunately I've learned from experience
by Alicia Butler
My fiancee always being there and helping me through it all
by Matt
Pilates
by Alex
Propanolol
by Giedrė
I accept my limitations but don't let them limit my ability to enjoy life.
by Melody
Education
by
Tai chi
by Geoff
Massages
by Jamie
Co-Enzyme Q10 reduced my muscle inflammation within hours and got me walking again.
by Don Smith
Medical management improves constantly.
by Jay
Knowing my diagnosis
by H Erb
knowing what my genetic condition helps me to know (and appreciate!) my limitations
by Andy
My medication
by Karen G. Friedhofer Thompson
Family and friends support and encouragement
by Vada Powell
El psicólogo
by Sara
Keeping active: swimming, walking, running, working, parenting, travelling - living life to the full and falling into bed exhausted every night
by Gareth
Protect myself from UV radiation and extreme heat / Protegerme del la radiación UV y el calor extremo
by Mariana
Hacer ejercicio
by Alberto Vilchis
Losarían y atenolol me tienen el ritmo muy regulado
by Helena
I have 5 children
by Vickisticki
A high protein and omega 3 diet improved my condition
by Bonita
A high protein and omega 3 diet improved my condition
by Bonita
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