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Optic Nerve Hypoplasia
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Optic Nerve Hypoplasia
Advice
Advice of Optic Nerve Hypoplasia
Meeting others with this condition
by CaitlinH
Validation and reassurance
by Christina
I found someone near me that understood
by Mikaila
My daughter Emma has ONH/SOD
by Christina
Being around people she knows
by Noreen
My granddaughter was recently diagnosed
by gramma
Having a supportive family is key
by Ty
Having my daughter attend a school for the blind
by CaitlinH
I found doctors that researched into her condition
by Mikaila
She was diagnosed at 2- 2 & 1/2 weeks old
by Christina
Routine
by Noreen
We are clueless and still learning
by gramma
Having an understanding and experienced healthcare team is key
by Ty
Having her in therapies
by CaitlinH
My family attempted to support me
by Mikaila
Music
by Noreen
Would love a support group in our area
by gramma
Having a medication and care schedule that works for you and your needs
by Ty