Help us to help more people
| View more
View more
Toggle navigation
Tethered Spinal Cord Syndrome
Home
Map
Forum
Stats
Stories
Top questions
Advice
Diseasemaps
Close
Join the map
Do the survey
Login
en
English
Español
Italiano
Português
Deutsch
Čeština
Polski
Français
العربية
中文
Pусский
日本語
한국어
हिन्दी
Bahasa Melayu
Svenska
Tethered Spinal Cord Syndrome
Advice
Advice of Tethered Spinal Cord Syndrome
Having Untethering surgery in 2015 helped my pain so much
by Andrea Sproston
Writing a book based on true stories of chronic illness, chronic pain, rare diseases, and PTSD.
by Aimes
Ibuprofen
by Jorie
First surgery in 1998 at McGill/MTL Children's gave me a 99% asymptomatic life until age 22
by eeejay
Lyrica
by Rhonda
Fé em Deus
by Raissa
My husband is a constant support
by Andrea Sproston
A good support system: wonderful husband, daughter, family, and friends.
by Aimes
Gabapentin
by Jorie
Cannabis oil has helped me with pain and spasms in my legs, back, and bladder
by eeejay
Excellent Neurologist from U of Miami, FL Miller School of Medicine, Sylvestor Center
by Rhonda
Apoio da Família
by Raissa
I never wanted to give up... I am a fighter
by Andrea Sproston
Seeing others perserve and fight and having music that carries my mood forward like "The Fight Song"
by Aimes
?
by Jorie
2nd surgery at Stony Brook (hopefully) stopped the progression of my symptoms
by eeejay
Faith
by Rhonda
Apoio Psicológico
by Raissa