Story about Hereditary Angioedema .

HAE in me

Dec 2, 2


I was diagnosed accidentally, after seeing a TV show where the host talked about her HAE in 2014.

My first attack was at 8, when I was mistakenly hospitalized with appendicitis.  The surgery wasn't done, because I felt better in 3 days.  Next remembered attack was at 15, when my hands and feet got swollen.  It happened in US, still I was not diagnozed.

Throghout these years I have already had 3 unnecessary surgeries, diagnosed and treated against migrane, high blood pressure, dyscenesia, cholecistitus, appendicite, gynecological issues, allergy, trombophlebitis etc, all those diagnosis were taken off after diagnosed properly with HAE. 

I still do not have a local doctor, care center, hospital.  Do not have access to medicine.  I am not registred within the medical system here. I get consulted by a doctor from another country, who, God bless her kind heart, had been my number one supporter, just like my family.  

I have HAE type 1, no previous family history.

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Couple and Hereditary Angioedema

Is it easy to find a partner and/or maintain relationship when you hav...

What is Hereditary Angioedema

What is Hereditary Angioedema

History of Hereditary Angioedema

What is the history of Hereditary Angioedema?

Hereditary Angioedema and depression

Hereditary Angioedema and depression

Living with Hereditary Angioedema

Living with Hereditary Angioedema. How to live with Hereditary Angioed...

Hereditary Angioedema jobs

Can people with Hereditary Angioedema work? What kind of work can they...

Is Hereditary Angioedema contagious?

Is Hereditary Angioedema contagious?

Hereditary Angioedema cure

Does Hereditary Angioedema have a cure?