Linda Brown's interview


How did all start?

Coughing Blood

Do you already have a diagnosis? How long did it take you to get it?

My GP was very prompt and it seemed that I was seen quickly and soon had the diagnosis

For what medical specialties have you been treated? What has been the most useful specialty for your?

Oral steroids, ventolin, exercise, psychotherapy, homeopathy

What have been your biggest difficulties?

Overcoming poor respiration, chest infections, tiredness. for example when the illness flares up I can't manage to do household tasks like changing the duvet cover. That is too strenuous, but when I am well I can do it.

How has your social and family environment reacted? Have your social or family relationships changed?

My mother worries about me and I think she is quite frightened .

What things have you stopped doing?

walking up steep hills has never been a pleasurable activity for me , so I avoid this. Apart from that I don't think there's anything. actually thats's not true. I've stopped smoking some years ago, I also am careful in damp atmospheres, and I'm not that bothered about gardening , because leaf mould tec does set off the allergy.

What do you think about the future?

I think I am going to keep myself as well as possible and live a long life

So far, which years have been the best years in your life? What have you done during them?

I've had some great years for example when I was 43 began training in Martial arts and became a Master. I have stopped now and do more gentle exercise like Pilates. but recently I have taken up horseriding, which seems an odd thing to do at the age of 63 , especially as I am allergic to hay and fur etc.

What would you like to do if you didn’t have your condition?

Run

If you had to describe your life in a sentence, what would it be?

Interesting

Finally, what advice would you give to a person in a similar situation?

don't give up


May 22, 2018

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