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Fanconi Anemia
Advice
Advice of Fanconi Anemia
www.fanconi.org
by Nicholas
FAmily
by Macy
Having family around me when I had a bone marrow transplant in 2014
by Holly
Get treatment at an FA center (Cincinnati Children's Hospital Medical Center, University of Minnesota Masonic Children's Hospital, Sloan Kettering in NY
by E
Getting on with education
by Louise Dalgleish
My son had an unrelated bone marrow transplant for FA. He passed away in 2004.
by Ms. DL
My fiance
by Jacy
Check ups every 3 or 6 months
by
FAmily and friends
by Barbara
www.campsunshine.org
by Nicholas
Connect with a FA excellence center
by Macy
Rely on www.fanconi.org (Fanconi Anemia Research Fund) for information
by E
Keeping good company
by Louise Dalgleish
my daughter has VW disease and a congenital platelet aggregation disorder
by Ms. DL
My nieces and nephew
by Jacy
Remember to get grow hormones early in life
by
A little bit of sport
by Barbara
FA Centers: Cincinnati Childrens(
[email protected]
), Boston Childrens(
[email protected]
), U of Minnesota(John Wagner,
[email protected]
), Sloan-Kettering(Farid Boulad,
[email protected]
)
by Nicholas
Fanconi Anemia Research Fund (FARF)
by Macy
Register with Fanconi Anemia Research Fund for support, information, and much more.
by E
Expressing emotions
by Louise Dalgleish
my youngest son has type 1 dm, had sx for a chiari malformation, tethered cord, has mild CP, and mitochondrial disorder
by Ms. DL
Food
by Jacy
Don't hide at home. Live life and experience the world
by
Cooking!
by Barbara