Help us to help more people
| View more
View more
Toggle navigation
Goldenhar Syndrome
Home
Map
Forum
Stats
Stories
Top questions
Advice
Diseasemaps
Close
Join the map
Do the survey
Login
en
English
Español
Italiano
Português
Deutsch
Čeština
Polski
Français
العربية
中文
Pусский
日本語
한국어
हिन्दी
Bahasa Melayu
Svenska
Goldenhar Syndrome
Advice
Advice of Goldenhar Syndrome
Being a board member of Patient Charity called Laposa.
by Petra Poulissen
i wear hearing aids to help me hear..
by chloe jade
Getting our son any and all forms of therapies, services, and teachers have improved his developmental delays.
by Kris, mother of 4 year old son with Goldenhar Syndrome
Football
by Martin.smith
Pintar es una de las actividades mas importantes para mi proceso de sanación interna
by María Guadalupe
Founding out something new going with my daughter with her Goldenhar Syndrome
by Judy
Founding out something new going with my daughter with her Goldenhar Syndrome
by Judy
APAP/CPAP Therapy for moderately severe Sleep Apnea. ❤
by Cynthia Murphy- Craniofacial Awareness Advocate
Jai eu une belle enfance
by Aminata
Having a great partner
by Petra Poulissen
my parents help me alot..especially when im sad
by chloe jade
We are thankful to have such strong support from our family.
by Kris, mother of 4 year old son with Goldenhar Syndrome
Mis padres y mi novio.
by María Guadalupe
I feel like I lost for her everyday
by Judy
I feel like I lost for her everyday
by Judy
Meeting others within the craniofacial community who I can relate to in more ways than one. ❤
by Cynthia Murphy- Craniofacial Awareness Advocate
Je me comporte en peu comme tout le monde
by Aminata
Having a Family doctor who's helping at anytime
by Petra Poulissen
i like reading..but have limited vision
by chloe jade
Would love to connect with other families that share a similar journey.
by Kris, mother of 4 year old son with Goldenhar Syndrome
Hacer deporte constantemente
by María Guadalupe
Looking forward to founding friends for my daughter and me to able to relate to about whats going on with her
by Judy
Looking forward to founding friends for my daughter and me to able to relate to about whats going on with her
by Judy
Advocating for the cause of craniofacial differences and involving EVERYONE in these efforts. We must raise awareness and enact change TOGETHER! ❤
by Cynthia Murphy- Craniofacial Awareness Advocate
Je vais a une école secondaire normale
by Aminata