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Moebius Syndrome
Advice
Advice of Moebius Syndrome
1- Finding others/listening and sharing
by Sandy
Moebius conference and Fb groups
by Emma
Deus
by Kelly
APAP/CPAP Therapy for moderately severe Sleep Apnea. ❤
by Cynthia Murphy- Craniofacial Awareness Advocate
Give More. Start by giving more than what is expected
by Maridel Carapatan
2- Moving ahead - connecting with more people since in our raririty, we are 'normal'
by Sandy
Understanding/know what you are capable and not listening to what others think they know you can do
by Emma
Mi madre
by Kelly
Meeting others within the craniofacial community who I can relate to in more ways than one. ❤
by Cynthia Murphy- Craniofacial Awareness Advocate
Help Others. Helping others gives us a sense of connectedness, happiness, fulfillment and meaning
by Maridel Carapatan
3- Finding ways to change our corners of the world
by Sandy
Supportive close friends and family
by Emma
Familia
by Kelly
Advocating for the cause of craniofacial differences and involving EVERYONE in these efforts. We must raise awareness and enact change TOGETHER! ❤
by Cynthia Murphy- Craniofacial Awareness Advocate
Build a support network.
by Maridel Carapatan