My name is April. I am 34 and live in the San Antonio, Texas area. I was born with Niemann Pick Type B (ASMD). I was diagnosed at Loma Linda in California when I was 2 while in the hospital with Mono. I had multiple surgeries...
Me chamo Rosangela, sou mãe de uma portadora de NIemann Pick tipo B, ela tem 14 anos, moramos no Brasil.
Ela tem o sintomas desdes os 4 anos de idade, mas somente aos 8 anos tivemos o diagnostico de NPB, desde então não fazemos ...
0 people with Niemann-Pick Disease have taken the SF36 survey. Mean of Niemann-Pick Disease is 0 points (0 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey