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Noonan Syndrome
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Noonan Syndrome
Advice
Advice of Noonan Syndrome
Maintaining adequate hydration.
by Sarah
Tonsils and adenoids out
by Rebecca (parent name)
Dar asesoramiento a las familias.
by Noonan Aragon
Physiotherapy
by Lily
learning everything i can about noonans
by Bree
Parents never treated me any different
by Esther
Mom who pushed me to do my best
by Guillaume
I see many doctors, I'm sure they have helped me
by Kayla
Israeli made LymphPress has been a major help
by Francis Jacobson
Physical therapy to help w hypotonia.
by Sarah
G-tube in and a home blended diet instead of formula
by Rebecca (parent name)
Asesorar sobre tratamiento de hormona.
by Noonan Aragon
Occupational therapy
by Lily
taking time for me. its not selfish. its necessary
by Bree
Always stood up for what I believed in
by Esther
Having help at school in high school
by Guillaume
I see an Energy Healer, she has taken away my chest pains and vomiting, and anxiety
by Kayla
I wish my parents had told me about my condition early on and how to accept it
by Francis Jacobson
Horse riding therapy for core strength and self-confidence.
by Sarah
Clonidine for sleep, Nebs not puffers for my lungs, glasses
by Rebecca (parent name)
Poner en marcha unos ensayos clinicos sobre las estatinas.
by Noonan Aragon
Speech and Language therapy
by Lily
online websites and groups dedicated to bringing people together with rare diseases
by Bree
My mom, and family ❤️
by Kayla
Having NS has definitely made me more empathetic
by Francis Jacobson