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Usher Syndrome
Advice
Advice of Usher Syndrome
Accept that you have this disease.
by Albert
Started cane walking in 2015 and apply for GD
by Karen
Focus on what I can do rather than what I cannot do. Use my limits as a potentia
by Dario
Join us in our effort to find a treatment for usher syndrome: www.ushersyndroom.nl/en
by Collin Eisema
Don't deny your condition
by Paul
I love to travel.
by Anna
I have a very supportive family which gives me strength and motivation to keep going
by Carrie Ann
Writing a blog - http://www.sunshineamongstrain.com
by Deborah Heffernan
Started with long cane age 40, I love it
by Claire
Try live as a normal person things you cant do you can replace them in other things you can do perfectly
by Steve Van Nevele
Beïng loved by my partner. Love is first and everything!
by Tim de Reuver
Raising our kids with my husband
by Maartje
Horizon verbreden ondanks smallere wereld
by AJ van Heumen
"Who says you cannot?"
by James Clarke
Being positive.
by Emma
A nice caring family
by Raoul
contact with other people affected by usher
by Helen
I take Vitamin A Pulmintate every day. I beileive it slowed down the progress of the RP.
by Cindy
Hearing Aids
by Dirk
Hond Dilan
by Simone Kramer
Improve other people's attitudes
by Sarah Reed
I try to see things from a positive angle: humour is an important ingredience.
by Tina
i have good family and friends. So i am lucky.
by Yelda
All my 3 guidedogs diet brougt me back to life
by Hilda Pruijs
I diet vegetarian
by Mabel
Talk about it.
by Vuerhard
social contacts
by Velghe Carine
My friends & family
by Rudo
Transcorneal stimulation with iontophoresis and dry needling really improved my vision
by Filip
try to enjoy every day
by nathalie
family
by lindsay
Adapt to the conditions you're faced with.
by Albert
Networking with people with the same problems and learn from them to accept the Syndrome
by Dario
Adapt to it and enjoy life!
by Collin Eisema
Listen to your family
by Paul
I love to jogging.
by Anna
I try to exercise every day which helps keep me feeling healthier and alert
by Carrie Ann
Finding others with Usher Syndrome, I feel less alone and have made many wonderful genuine friends.
by Deborah Heffernan
Contact agencies and charities, reach out
by Claire
Give every day the best from yourself and enjoy as much you can
by Steve Van Nevele
Helping others as a volunteer feels great!
by Tim de Reuver
Walking the camino de Santiago for a brighter look at life
by Maartje
"I'm Deafblind. I Run because I Can."
by James Clarke
Having a Guide Dog.
by Emma
A fun study
by Raoul
I have a cochlear implant! So thankful since I can no longer lipread!
by Cindy
Sign Language
by Dirk
Bjorn
by Simone Kramer
Access rights is for everyone
by Sarah Reed
I write. I have a blog where I write about my life with RP. (I have Usher's syndrome, so I actually write about my life as deafblind.) Writing is also recommended as: 1) Therapy for yourself 2) A way to inform others.
by Tina
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