Living with Addison Disease. How to live with Addison Disease?

Can you be happy living with Addison Disease? What do you have to do to be happy with Addison Disease? Living with Addison Disease can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Addison Disease


Living with Addison's Disease


Living with Addison's Disease can present unique challenges, but with proper management and lifestyle adjustments, individuals can lead fulfilling lives. Addison's Disease, also known as primary adrenal insufficiency, is a rare condition where the adrenal glands do not produce enough cortisol and sometimes aldosterone. Here are some essential tips for managing Addison's Disease:



1. Medication and Treatment


One of the most crucial aspects of living with Addison's Disease is adhering to the prescribed medication regimen. Take your medication as directed by your healthcare provider, typically involving daily oral corticosteroids such as hydrocortisone or prednisone. Additionally, some individuals may require mineralocorticoid replacement therapy with medications like fludrocortisone. Regularly monitor your hormone levels through blood tests to ensure proper dosage adjustments.



2. Emergency Preparedness


It is essential to be prepared for adrenal crises, which can be life-threatening. Carry an emergency injection kit containing a synthetic form of cortisol, such as Solu-Cortef, at all times. Educate your close contacts on how to administer the injection in case of an emergency. Wear a medical alert bracelet or necklace to inform others about your condition.



3. Stress Management


Stress can trigger adrenal crises, so it is crucial to manage stress levels effectively. Practice relaxation techniques such as deep breathing, meditation, or yoga. Engage in activities that bring you joy and help you unwind. Prioritize self-care and ensure you get enough rest and sleep.



4. Diet and Nutrition


A well-balanced diet is essential for individuals with Addison's Disease. Consume a diet rich in whole grains, fruits, vegetables, and lean proteins. Additionally, ensure an adequate intake of sodium, as individuals with Addison's Disease may have low levels. Consult with a registered dietitian to create a personalized meal plan that suits your needs.



5. Regular Exercise


Engaging in regular exercise can help improve overall well-being and manage stress levels. However, individuals with Addison's Disease should exercise with caution. Start with low-impact activities such as walking, swimming, or cycling, and gradually increase intensity. Always listen to your body and rest when needed. Consult your healthcare provider before starting any new exercise regimen.



6. Medical Alertness


Ensure that all healthcare professionals are aware of your Addison's Disease diagnosis. Inform your doctors, dentists, and specialists about your condition and the medications you are taking. They should be cautious when prescribing additional medications, as some can interfere with cortisol levels. Regularly update your medical history and carry a list of current medications.



7. Support System


Building a strong support system is vital for individuals with Addison's Disease. Connect with support groups or online communities where you can share experiences, gain knowledge, and find emotional support. Communicate openly with your loved ones about your condition, helping them understand how they can support you.



8. Regular Check-ups


Regular medical check-ups are crucial for monitoring your condition and adjusting treatment if necessary. Visit your healthcare provider as recommended and discuss any concerns or changes in symptoms. Stay proactive in managing your health and follow the guidance provided by your medical team.



Remember, living with Addison's Disease requires ongoing self-care, awareness, and proactive management. With proper treatment, lifestyle adjustments, and support, individuals with Addison's Disease can lead fulfilling lives.


by Diseasemaps

In my support groups, I've found that we overwhelmingly suffer from depression and anxiety, even if these had not been issues before the development of the disease. This can be related to the disorder of our hormone function and other physical factors. Many of us have found it necessary to take antidepressants to help regulate these conditions. A good emotional support system, including family, online support groups, clinical therapists and/or friends are key. Life can be good but it takes effort and good support system to get there. Many of us talk about our "new normal" in which we've adjusted our expectations to match limitations we ultimately face.

3/11/17 by justdeirdre 1051

I'm in my 14th year being diagnosed with primary Addisons I have had 3 crisis situations I work full time as a bus driver I'm happy learn your body's limits then you will be fine everyone has good and bad days

3/12/17 by S 2350

Even under control people with addisons sometimes suffer from depression. Antidepressants and support groups help. Its really hard to find someone locally with it.

3/12/17 by Vikki 1000

It's difficult. You'll probably be very upset after your diagnoises but everyone has the ability to be happy. Get on your right meds, good food, get outdoors and make it count

4/27/17 by Missy 1650

YES! Maintain your disease and see a doctor regularly

9/12/17 by Tina 2050

Take it day by day. Set goals. Stay positive. Work damn hard. Make a success of it all.

2/16/19 by Edward 1400
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Do the treatment properly, eating properly, practicing physical activity, seek to do things that bring pleasure, slows down the pace of work.

6/24/17 by Elineuda. Translated
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Addison's disease changes us the life we can no longer be the limit, or abusing of adrenaline, we have to bus ar. A tranquil lifestyle by relaxing identify everything that causes us stress, so always talk with our loved ones of our illness and what to do in case of a crisis We went into mourning when we give the diagnosis, but with support and used to give us to our new style we can be happy

10/17/17 by Lizz. Translated
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You can lead a normal life, depending on how it has been diagnosed with the disease, some carry a small "loading".... Especially if, through diagnosis and starting treatment has suffered a lot. Today, there are more information and I don't know it takes both in the diagnosis. The important thing of this disease is to know oneself, detect in time if the symptoms that you feel are indicators that we need more doses.

10/18/17 by Susana. Translated
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Of course you can be happy , we must be as quiet as possible and to face life in the best way, because addison's affects a lot animamente, so smile to life and be happy

10/18/17 by . Translated
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clear that you can live with it just have to be very judicious with the diet food including the consumption of salt and of course the most important to take proper dose and schedule of your medications

10/31/17 by Dayana. Translated
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Stop everything and try to treat. Ask for help!

11/6/17 by ana carolina. Translated

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