What is the prevalence of Arnold Chiari?

How many people does Arnold Chiari affect? Does it have the same prevalence in men and women? And in the different countries?


Arnold Chiari malformation is a relatively rare neurological condition characterized by structural defects in the base of the skull and the cerebellum. It is named after the Austrian pathologist Hans Chiari, who first described the condition in the late 19th century. The malformation involves the displacement of the cerebellar tonsils through the opening at the base of the skull, causing compression and disruption of normal brain function.


While precise prevalence rates are challenging to determine due to variations in diagnostic criteria and the asymptomatic nature of some cases, it is estimated that Arnold Chiari malformation affects approximately 1 in every 1,000 to 2,500 individuals. The condition is more commonly diagnosed in females than males, and it is often present from birth, although symptoms may not manifest until later in life. Arnold Chiari malformation can be associated with a range of symptoms, including headaches, neck pain, balance problems, and neurological deficits.


Early detection and appropriate management are crucial in minimizing potential complications and improving quality of life for individuals with Arnold Chiari malformation.


by Diseasemaps

Not too sure of the overall stats

7/23/17 by Erena 2000

1 in 1000 are affected by this. Of all varying degrees

8/30/17 by Michelle 2000

currently is is about 1/1000 people

5/27/18 by xyzmike1 3050

the prevalence is higher in children and young adults. it affects 1/1000 of the population. it affects woman more than men

11/29/19 by TRIPLE-1 CHIARI 2500
Translated from spanish Improve translation

It is unknown the prevalence. Affects more to the adult people.

8/30/17 by Candelaria. Translated
Translated from spanish Improve translation

During the NINETEENTH century and early TWENTIETH century, the prevalence of the disease is estimated at 1:1000 (one in one thousand live births). However, the use of diagnostic imaging has shown that Chiari malformations are much more common.6 The diagnosis is even more difficult by the fact that the majority of infants born with this disease do not manifest symptoms until adolescence, adulthood or old age, if they ever show any. The Chiari are more frequent in women than in men, and the type II is more prevalent in certain ethnic groups, such as afro-celtic.6

10/11/17 by Lynda Estrada. Translated
Translated from spanish Improve translation

It is not rigorously studied, those affected are a small part of the world's population, that's why today we must fight for our illness to be investigated and integrated.

11/2/17 by Pochi. Translated

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