What is the life expectancy of someone with Arteriovenous Malformation AVM?

Life expectancy of people with Arteriovenous Malformation AVM and recent progresses and researches in Arteriovenous Malformation AVM


Arteriovenous Malformation (AVM) is a rare and complex condition characterized by abnormal connections between arteries and veins in the brain or spinal cord. These tangled vessels disrupt the normal blood flow and can lead to various complications, including hemorrhages, seizures, and neurological deficits. The prognosis and life expectancy of individuals with AVM can vary significantly depending on several factors.



Severity and Location of the AVM


The severity and location of the AVM play a crucial role in determining the life expectancy of an individual. AVMs are graded on a scale from I to V, with V being the most severe. Higher-grade AVMs are associated with a greater risk of complications and shorter life expectancy. Additionally, the location of the AVM within the brain or spinal cord can impact the prognosis. AVMs located in critical areas, such as the brainstem, may pose higher risks and have a poorer prognosis.



Age at Diagnosis


The age at which an AVM is diagnosed can also influence life expectancy. AVMs that are detected earlier in life may have a longer time frame for potential complications to arise. Conversely, if an AVM remains undiagnosed or untreated for an extended period, the risk of hemorrhage or other complications may increase, potentially impacting life expectancy.



History of Hemorrhage


Prior history of hemorrhage from an AVM can significantly affect life expectancy. Hemorrhages can cause severe damage to the brain or spinal cord, leading to long-term disabilities or even death. Individuals who have experienced one or more hemorrhages are generally considered to be at higher risk for future bleeding, which can further impact their prognosis.



Treatment and Management


The treatment and management of AVMs can greatly influence life expectancy. The primary goal of treatment is to prevent hemorrhages and manage symptoms. Treatment options include surgical removal of the AVM, endovascular embolization (blocking the abnormal blood vessels), and stereotactic radiosurgery (focused radiation to shrink the AVM). The choice of treatment depends on various factors, including the size, location, and accessibility of the AVM, as well as the individual's overall health.



It is important to note that each case of AVM is unique, and the prognosis can vary significantly from person to person. Some individuals with small, low-grade AVMs may live their entire lives without experiencing any significant complications. On the other hand, individuals with large, high-grade AVMs may face a higher risk of hemorrhage and associated complications, which can impact their life expectancy.



Long-Term Outlook


With advancements in medical technology and improved understanding of AVMs, the long-term outlook for individuals with AVM has improved over the years. Early detection, appropriate treatment, and regular monitoring can help manage the condition and reduce the risk of complications. However, it is crucial for individuals with AVM to work closely with a healthcare team specializing in neurology or neurosurgery to ensure proper management and follow-up.



In conclusion, the life expectancy of someone with Arteriovenous Malformation (AVM) depends on various factors, including the severity and location of the AVM, age at diagnosis, history of hemorrhage, and the effectiveness of treatment and management strategies. It is essential for individuals with AVM to receive appropriate medical care and follow-up to optimize their prognosis and quality of life.


by Diseasemaps

This completely depends on where the avm is located, what symptoms it presents, and whether the avm is treated or not. Treated avms have a good chance of never bleeding again so your life expectancy would be the same as without avm. An untreated avm is like a ticking time bomb. Some are not treatable or must be reduced in size before being treated. You might have radiation or gamma knife to reduce the size of the avm or nidus. The smaller avm could be treated more safely later using embolization or Craniotomy removal.

9/12/17 by Rhonda 2150

Again, this is dependent on the location of the AVM

9/13/17 by Jill 2000

I’m 44. I’ve known about mine sine I was 16. I’m doing fine. I had another scan recently to have a reference since all my old scans aren’t around anymore . I haven’t had a paralyzing headache since I changed my additude about how I deal with stress( college, teen life, etc) shortly after my diagnosis. Once I decided to make a change I haven’t had an incident of 1/2 body paralysis and brain bursting headaches. —- 1.9 x 2.5 x 1.6 cm /branch of the right M1 segment to right superficial cerebral middle vein.

5/17/18 by James 150

That will depend on where it is and how fragile, my own case is unusual, I had a haemorrhage at only 13 months old, major surgery in 1988, still have 2 AVMs so not symptom free, but am now 63. Provided I don't take silly risks, I do hope to have a reasonably normal life expectancy. I do know there is increased risks of dementia, TIA etc, I do lots of brain training, puzzles etc. The biggest danger is ignorance by some medical professionals on the side effects as this is a rare conditon.

7/5/20 by Mary 2500

Depends if it hemorrages. My old man is still here and will be 60 in January. Has a near enough life expectancy as everyone else. Absolute lottery. The longer you live without surgery or treatment the more the chance of it going bang in the long run. Some people choose not to.have treatment which is entirely personal choice we were not going to take the chance

11/3/22 by Heather 5020

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