How do I know if I have Carcinoid Syndrome?

What signs or symptoms may make you suspect you may have Carcinoid Syndrome. People who have experience in Carcinoid Syndrome offer advice of what things may make you suspicious and which doctor you should go to to receive treatment


Carcinoid syndrome is a rare condition that occurs in individuals with carcinoid tumors. These tumors are typically found in the gastrointestinal tract, but can also develop in other parts of the body such as the lungs or ovaries. Carcinoid syndrome is characterized by a set of symptoms caused by the release of certain chemicals, including serotonin, into the bloodstream by the tumor.



Recognizing the signs and symptoms of carcinoid syndrome is crucial for early diagnosis and treatment. The symptoms can vary from person to person, but some common indicators include:




  • Flushing: This is one of the most noticeable symptoms of carcinoid syndrome. Flushing typically affects the face and upper body, causing the skin to become red and warm. It may be accompanied by a sensation of warmth or a rapid heartbeat.

  • Diarrhea: Chronic or recurring diarrhea is another common symptom. It may be watery and occur multiple times a day.

  • Abdominal pain: Some individuals with carcinoid syndrome may experience abdominal pain or cramping. This pain can range from mild to severe.

  • Wheezing and shortness of breath: Carcinoid tumors in the lungs can cause wheezing, difficulty breathing, and shortness of breath.

  • Heart valve problems: In some cases, carcinoid syndrome can lead to heart valve damage, resulting in symptoms such as fatigue, swelling, and irregular heartbeat.



Consulting a healthcare professional is essential if you suspect you may have carcinoid syndrome. They will perform a thorough evaluation, which may include:




  • Medical history: Your doctor will ask about your symptoms, medical history, and any risk factors you may have.

  • Physical examination: A physical examination will be conducted to assess your overall health and look for any signs of carcinoid syndrome.

  • Blood and urine tests: These tests can help measure the levels of certain chemicals in your body, such as serotonin and chromogranin A, which may be elevated in individuals with carcinoid syndrome.

  • Imaging tests: Imaging techniques like CT scans, MRI, or ultrasound may be used to locate and evaluate the carcinoid tumor.

  • Biopsy: A biopsy may be performed to confirm the presence of a carcinoid tumor and determine its characteristics.



Early detection and treatment of carcinoid syndrome are crucial for managing the condition and improving quality of life. If you experience any of the symptoms mentioned above, it is important to seek medical attention promptly. Remember, only a healthcare professional can provide an accurate diagnosis and develop an appropriate treatment plan tailored to your specific needs.


by Diseasemaps

Any symptom similar to IBS can be a symptom for Carcinoid. If you are treated for IBS and get no better - you need your doctor to do some further testing. You need to research this disease and see if the symptoms you are experiencing are similar to these and if so you need to be YOUR OWN ADVOCATE and bring it to the attention of your doctor. A doctor can only diagnosis something if he actually tests for that "something". A Good Gastroenterologist or Primary Care Provider should be willing to do the testing for you. Most NET Specialists will only see you if you have been confirmed to have the disease. A good Oncologist should also be a doctor that would be able find this disease.

9/14/17 by Vickie 2000

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