How is Chronic Fatigue Syndrome / M.E. diagnosed?

See how Chronic Fatigue Syndrome / M.E. is diagnosed. Which specialists are essential to meet, what tests are needed and other useful information for the diagnosis of Chronic Fatigue Syndrome / M.E.


How is Chronic Fatigue Syndrome / M.E. diagnosed?


Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (M.E.), is a complex and debilitating condition characterized by extreme fatigue that cannot be explained by any underlying medical condition. Diagnosing CFS/M.E. can be challenging as there are no specific tests or markers for the condition. Instead, healthcare professionals rely on a combination of medical history, physical examination, and exclusion of other possible causes to make a diagnosis.



Medical History


The first step in diagnosing CFS/M.E. involves a detailed medical history assessment. The healthcare provider will ask about the patient's symptoms, their duration, and any factors that may have triggered or worsened the fatigue. It is important for the patient to provide a comprehensive account of their symptoms, including the severity and impact on daily life activities.



Physical Examination


After reviewing the medical history, a physical examination is conducted to rule out other potential causes of fatigue. The healthcare provider will assess various body systems, including cardiovascular, respiratory, and neurological systems, to identify any abnormalities or signs of other illnesses. While physical examination findings may not directly confirm CFS/M.E., they help exclude other conditions that may present with similar symptoms.



Diagnostic Criteria


Diagnostic criteria are used to establish a diagnosis of CFS/M.E. The most widely accepted criteria are the Fukuda criteria and the Canadian Consensus Criteria (CCC). These criteria require the presence of severe fatigue lasting for at least six months, along with specific accompanying symptoms such as impaired memory or concentration, unrefreshing sleep, muscle pain, joint pain, headaches, and post-exertional malaise.



Fukuda criteria:



  • Severe fatigue lasting at least six months

  • Exclusion of other medical or psychiatric conditions that could explain the fatigue

  • Presence of at least four accompanying symptoms, including impaired memory or concentration, unrefreshing sleep, muscle pain, joint pain, headaches, tender lymph nodes, and post-exertional malaise



Canadian Consensus Criteria (CCC):



  • Severe fatigue lasting at least six months

  • Exclusion of other medical or psychiatric conditions that could explain the fatigue

  • Presence of at least eight accompanying symptoms, including impaired memory or concentration, unrefreshing sleep, muscle pain, joint pain, headaches, tender lymph nodes, post-exertional malaise, and others



Exclusion of Other Conditions


Since there are no specific tests for CFS/M.E., it is crucial to exclude other medical conditions that could explain the symptoms. The healthcare provider will order a series of tests to rule out alternative diagnoses. These may include blood tests, imaging studies, and other specialized investigations depending on the patient's specific symptoms and medical history. The purpose of these tests is to identify any underlying conditions that may mimic or contribute to the fatigue experienced by the patient.



Collaborative Approach


Diagnosing CFS/M.E. often requires a collaborative approach involving multiple healthcare professionals. Due to the complexity of the condition, patients may be referred to specialists such as rheumatologists, neurologists, or infectious disease specialists to ensure a comprehensive evaluation. This multidisciplinary approach helps to rule out other potential causes and increases the accuracy of the diagnosis.



Longitudinal Assessment


It is important to note that diagnosing CFS/M.E. is not a one-time event. The condition is often diagnosed based on a longitudinal assessment of symptoms and their impact on the patient's daily life. Healthcare providers may request follow-up visits to monitor the persistence and progression of symptoms over time, ensuring that the diagnosis remains appropriate.



In conclusion, diagnosing Chronic Fatigue Syndrome / M.E. relies on a thorough medical history assessment, physical examination, exclusion of other conditions, and adherence to specific diagnostic criteria. While there are no definitive tests for CFS/M.E., healthcare professionals use a combination of these approaches to make an accurate diagnosis and provide appropriate management strategies for patients.


by Diseasemaps

We had to go eliminate MS and other neuroimmune issues like Lupus then research it ourselves and educate my wife's primary care physician who learned enough to diagnose her.

4/17/19 by MEAction of CO

Blind Luck and perhaps a doctor that will listen

12/20/19 by ME International

Currently by exclusion of other conditions and exhibiting a set of symptoms for more than 6 months.

2/21/17 by Catherine 1002

By elimination

5/4/17 by Ben 1079

I was diagnosed by my family physician assistant after all my test kept coming back normal but doctor could tell I was not ok at all. I think having a medical professional that has known you for years & that genuinely cares about you is what is needed for a diagnosis, the level of degree they have doesn't matter if doctor doesn't believe CFS is anything more than a person being "lazy & crazy."

5/12/17 by missylob 1056

Diagnosi di esclusione. Tipizzazione linfocitaria. Matching the criteria (Canadian, Fukuda)

8/27/17 by Emy 2050

Pretty much when they run out of options to test you for.

8/30/17 by Jaime 800

There isn't a test for ME yet, it's diagnosed by eliminating everything else that it might be, and by using a questionnaire that looks at a range of symptoms. The key symptoms are post exertional malaise, fatigue for no particular reason and lasting for at least 6 months.

9/5/17 by Shirley 2050

It is a process of elimination really. Doctors need to run a whole range of tests to rule out other things such as cancer (my doctor first thought I had lymphoma) and it can be a lengthy process.

9/8/17 by Sam 1400

A rheumatologist diagnosed Fibromyalgia in 2015, but I was not responding to meds so GP did the immune panel of blood tests and mine came back with off the charts reactivated Epstein Barr Virus. Since doctors are NOT taught about using anti-virals (they generally just leave viruses alone) by the time I had done the research AND fought for long term high dose anti-viral (Valtrex) EBV was entrenched and so was ME/CFS. It took only 4 years from initial, extraordinary fatigue after any exertion/exercise (a common early symptom) to being completely housebound & bedridden. Still fighting for SSDI and living off shrinking retirement funds. #SillySheets is a fundraiser I organized with a friend (12 years fighting ME/CFS) to benefit www.omf.ngo research. US government funding is essentially $5 per patient.

9/8/17 by 2560

Process of elimination and presence of particular symptoms. Although a few scientists are very close to a specific diagnostic test.

9/10/17 by Sharon 1500

By elimination of other illness Its usually after 6 months contant post viral illness u can be diagnosed But these days its getting more compicated with pych doctors interferring

1/17/18 by Annette 2500

If a patient gets their diagnosis from a doctor who is not a CFS-ME specialist, they should go to a specialist and get a confirmation through the latest diagnosis techniques. There are those who have been misdiagnosed because a doctor who assumes this is just overwork fatigue gives out the diagnosis to those who do not have the disease. I was diagnosed via T-cell testing, as well as fitting the criteria. I do not know how others are being diagnosed to date. I do know that the usual medical tests that have been done over and over for so many of us, are completely useless in diagnosing this disease. They usually come back normal and we are said to be 'fine' for which we are expected to leave happy. I have seen the list of those tests but cannot list it right now.

3/2/18 by Beti 2700

Non-refreshing sleep for a period of months. Tenderness or pain at specific anatomical points. Exhaustion after simple tasks. Breathlessness that does not result from hard work or exercise. Weakness

8/9/18 by cathy 2500

it takes years and multiple MDs to get an ME Dx many exhaustive tests and humiliating appointments but once Dx'd ME patients need ME specialists and Neurologists and Immunologists all who are well versed in ME and we have few to none

4/6/19 by Fadra 2550

IOM or ICC criteria PEM, OI, sleep, pain, cognitive problems

8/3/19 by Jessica 1200

Go see a clinical ecologist to better understand the chemical origin of your disease. Acupuncturists and Chinese medicine practitioners can also help you--community acupuncture is most affordable.

12/12/19 by Joanna 6200

If you can find a doctor that will listen, I would give them the IC primer and then tell them your conditions that bother you. They might be able to help with many conditons that can be treated. ME does not have a cure.

12/21/19 by Pam 3550

It’s very hard. They have to rule out all other possibilities, and even then they don’t want to diagnose you.

1/17/21 by Emmy 2250
Translated from spanish Improve translation

It is diagnosed by ruling out other neurological diseases.

2/24/17 by Anabel Albornoz Molinari. Translated
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By a process of elimination. This is a very long and nerve-wracking. Every new test there is hope and answers and fear of diagnosis. Finally, to say that there is not much to do except trial and error

3/9/17 by Edith. Translated
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There is No evidence. Is diagnosed with the medical history

3/10/17 by Yabisa. Translated
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There are several key things that we suffer all, some criteria and then rule out other diseases

5/12/17 by Marisa. Translated
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Depends on the doctor. ideally, q would have a multidisciplinary team... But there is.. If q, there are two internists expeetas in the areas of Madrid and Barcelona.. The dra Quintana (Ana M Quintana 180 eu first consultation and 105 following) in Madrid ybBarcelona. The dra Ceacero in Madrid.. caring for asisa, dkv, sanitas... And tb private.. I don't remember the price.. But 100 euros approx. Send you super analysis .stress test, holter, test, sleep, etc to rule out q these diseases are due to problems of endocrine or heart.. And from there.. Decidrn... Are many tests and is not the best thing for the fatigue, or physical or mental.. But when you ask for a disability or. Work adaptation are useful or if there is a wrongful dismissal

5/25/17 by Cristina. Translated
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by ruling out other diseases similar

5/25/17 by Yolanda Valledor. Translated
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Ruling out other pathologies

9/11/17 by Eduardo Casasnovas. Translated
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The good professional will find out all of your patient and analyzes check-ups of blood and urine . Next to the proof of esfuersi.

9/11/17 by Haydee de bielik. Translated
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It is diagnosed by your symptoms described above, and always when they persist for more than 6 months. In addition, you see changes in a test called SPECT of the BRAIN that demonstrates a hipoperfusion brain in certain areas.

10/19/17 by Heidrun Kroner. Translated

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