What is the life expectancy of someone with Cluster Headaches?

Life expectancy of people with Cluster Headaches and recent progresses and researches in Cluster Headaches


Cluster headaches are a debilitating neurological condition characterized by excruciatingly painful headaches that occur in cyclical patterns or clusters. These headaches are often described as one of the most severe types of pain a person can experience. While the impact of cluster headaches on an individual's quality of life can be significant, it is important to note that they do not directly affect life expectancy.



Cluster headaches typically start in adulthood and are more common in men than women. They are characterized by severe, unilateral (one-sided) pain that is often centered around the eye or temple. The pain is often accompanied by other symptoms such as redness and tearing of the eye, nasal congestion, and restlessness. The exact cause of cluster headaches is still not fully understood, but it is believed to involve abnormalities in the hypothalamus, a region of the brain that plays a role in regulating sleep-wake cycles and other bodily functions.



While cluster headaches themselves do not directly impact life expectancy, the condition can have a profound effect on a person's overall well-being. The intense pain and frequency of attacks can lead to significant disruptions in daily life, including difficulties with work, sleep disturbances, and emotional distress. The unpredictable nature of cluster headaches can also cause anxiety and fear of when the next attack will occur.



Treatment for cluster headaches focuses on managing and reducing the frequency and intensity of attacks. Medications such as triptans, corticosteroids, and preventive medications like verapamil are commonly prescribed to provide relief and prevent future episodes. Oxygen therapy and nerve blocks may also be used in some cases. Additionally, lifestyle modifications such as avoiding triggers like alcohol and certain foods, maintaining a regular sleep schedule, and managing stress can help in managing cluster headaches.



It is important for individuals with cluster headaches to work closely with healthcare professionals to develop an individualized treatment plan. Regular follow-ups and adjustments to medications or therapies may be necessary to effectively manage the condition.



While cluster headaches can significantly impact a person's quality of life, they do not directly affect life expectancy. It is crucial for individuals with cluster headaches to seek appropriate medical care and support to effectively manage the condition and improve their overall well-being.


by Diseasemaps

Well this is a loaded question. Some people go way to early mostly because they can't bear the pain of the disease and don't the proper support group. Others are able to function and live a semi normal life and live a long time. I think a song time goes on we will continue to see new treatments like Neurostimulation that will become more prevelant. There are others that are currently being researched such as Ketamine.

2/21/17 by Lucas 1152

CH is not lethal, only suicide is a risk

3/3/17 by Yoda 4292

I know that the life expectancy of cluster headache sufferers exceeds 65 (where I am now). On the forums you will find people of all ages. While you feel extremely sad for children as young as 7 copping this at such an early age there are some long time sufferers who have had to deal with it throughout their life. Cluster headaches are also known and well named as suicide headaches so there have been sufferers in the past that have not achieved the term of their natural life.

3/4/17 by Donna 1005

I thought it was the same as everyone else's unless there is something I don't know about. I know there is something available at the moment which is an implant in the skull but don't think it's widely available yet.

4/27/17 by Matthew Bcfc 1000

Life expectancy is good. New thing is botox injections and implant of neuro stimulators.

5/21/17 by Pepe922 2000

We are all ages. I really don't know

6/3/17 by Maria 2001

It is the same as someone that doesn't get CH

6/4/17 by Tim 2150

Will power and support groups

6/11/17 by Jeff D 2000

Other than the risk of suicide there seems to be no correlation, no permanent damage physiologically anyway.

9/23/17 by stan 1000

The other name for cluster headaches is suicide headaches. The headaches don't kill you directly, being worn down by them does.

10/18/17 by Nigel 500

Cluster Headaches are not killers - -they are not cancer or heart disease. However, there are secondary conditions that go along with CH. For example, I have Horner's Syndrome from my Chronic Cluster Headaches. I had four MRIs to determine that the Horner's was caused by CH and not something life-threatening. My vision is slightly impaired as a result. I would say that someone with CH can life a normal lifespan if they make a decision to not let the pain control their life and to keep living life to the fullest possible. Keep participating in studies about CH, be informed about new treatments, do not give up -- it is possible the scientists/doctors will one day figure this out.

10/26/17 by Lee-Alison 2000

Life expectancy is normal. Suicide is high in those with cluster headaches

12/22/17 by Ange 200

There are no assumptions to anyone about this ... Apparently not everyone has yet understood the disease and is not aware of what suffering it is causing ... Perhaps in the future they will understand more

2/1/18 by Danny 3050

Normal, life is not shortened.

10/20/18 by Michael Trapp 1600

same as other people

11/7/18 by Oliver 3000

Well this is a loaded question. Some people go way to early mostly because they can't bear the pain of the disease and don't the proper support group. They throw themselves for a train or jump of a building or do other things to end their life.Others are able to function and live a semi normal life and live a long time. Lucky enough in time we will continue to see new treatments like Neurostimulation that will become more prevelant. There are others that are currently being researched such as Ketamine. CH is not lethal, only suicide is a risk.

11/7/18 by MC 2500

I don't know the answer yet

5/16/19 by vasilis 2500

Overdosing and addiction can affect quality and longevity of life. I don't believe life expectancy is directly affected by clusters. They aren't associated with any long term damage as far as I know and what my doctors/specialists have discussed with me. But self-harm is a big concern.

5/20/19 by Kendra 4550

Life expectancy is not directly affected by CH. However life expectancy can be affected by things we do to manage the pain of CH like self- medication through alcohol or drugs, self-mutilation, or suicide.

8/22/19 by Judy 1600

Clusters are not life threatening, but they have been dubbed "suicide headaches" for good reason.

4/13/20 by Larry 5050

The diagnosis of cluster headaches doesn't change your life expectancy in the primary condition.

7/27/20 by Stėph 3000

Life expectancy of primary cause cluster headaches is the same as any other non cluster person.

7/27/20 by Stephanie 4650

I do not know the lifespan expectancy of cluster headache suffers. But I imagine it’s significantly lower than those who do not suffer from cluster headaches. I based this on the fact that many times I’ve considered living up to the nickname given to cluster headaches which is suicide headaches. Put my faith in God has prevented that so far.

5/20/22 by randalnowack@aol.com 2500
Translated from spanish Improve translation

My doctor tells me that it can't I would die with the passage of time the crisis began to subside

5/9/17 by Nélida. Translated
Translated from spanish Improve translation

No. Is. Dies. Step. When. Disappear. A. Advanced age. But. E. Read. That. There are. Cases. That. Disappear. Within A few years of startup. Of the disease. But in a. Very low. Percent of cases

9/17/17 by alex. Translated

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