Can people with Dermatomyositis and Polymyositis work? What kind of work can they perform?

See how people with experience in Dermatomyositis and Polymyositis give their opinion about whether people with Dermatomyositis and Polymyositis can work and what kind of jobs are more appropriated for people with Dermatomyositis and Polymyositis


Can people with Dermatomyositis and Polymyositis work?


Dermatomyositis and Polymyositis are chronic autoimmune diseases that primarily affect the muscles and skin. These conditions can cause muscle weakness, fatigue, and skin rashes, making it challenging for individuals to perform certain physical tasks. However, the impact of these diseases on a person's ability to work can vary greatly depending on the severity of the symptoms and the individual's overall health.


While some individuals with Dermatomyositis and Polymyositis may experience significant limitations that prevent them from working, others may be able to continue working with certain accommodations or adjustments. It is important to note that each case is unique, and the ability to work will depend on various factors such as disease progression, treatment effectiveness, and individual capabilities.


What kind of work can they perform?


The type of work that individuals with Dermatomyositis and Polymyositis can perform will largely depend on the severity of their symptoms and the impact on their physical abilities. It is crucial for individuals to consult with their healthcare providers and occupational therapists to assess their functional limitations and determine suitable work options.


Here are some considerations for individuals with Dermatomyositis and Polymyositis when exploring work opportunities:



  1. Flexible work arrangements: Jobs that offer flexible schedules or remote work options can be beneficial for individuals with fluctuating symptoms or fatigue. This allows them to manage their energy levels and work when they are feeling their best.

  2. Sedentary or desk-based work: Jobs that involve minimal physical exertion and primarily require desk-based tasks can be suitable for individuals with muscle weakness. Examples include administrative roles, customer service, writing, data entry, or computer programming.

  3. Adaptive equipment and assistive technology: Depending on the specific limitations, individuals may benefit from using adaptive equipment or assistive technology to perform their work tasks. This can include ergonomic tools, voice recognition software, or specialized keyboards.

  4. Job modifications and accommodations: Employers can make reasonable accommodations to enable individuals with Dermatomyositis and Polymyositis to perform their job duties effectively. This can include adjustments to workstations, modified schedules, or providing additional breaks to manage fatigue.

  5. Alternative career paths: In some cases, individuals may need to explore alternative career paths that are less physically demanding. This could involve transitioning to roles that align with their skills and interests but require less physical exertion.


It is important for individuals with Dermatomyositis and Polymyositis to communicate openly with their employers about their condition and any necessary accommodations. This can help create a supportive work environment and ensure that the individual's needs are met.


Conclusion


While Dermatomyositis and Polymyositis can present challenges in the workplace, many individuals can continue working with appropriate accommodations and support. The ability to work will depend on the severity of symptoms, disease management, and individual capabilities. By exploring flexible work arrangements, considering sedentary or desk-based roles, utilizing adaptive equipment, and seeking reasonable accommodations, individuals with these conditions can find suitable employment options that align with their abilities and interests.


by Diseasemaps

Any seating job would be good Avoiding jobs that require standing for too long, carrying heavy weights, climbing too many stairs

10/21/20 by Omneya Ashraf 1380

I have extreme muscle weakness in my arms hand's and wrists. I cannot sit or stand for too long, I must rotate from sit, stand, lay down all day. My hands don't work computer buttons well, the tips are large and calloused. I am glad I don't need to work, because I am all over the place with wether I am capable on any specific day.

3/6/22 by LC 100
Translated from spanish Improve translation

I was diagnosed with dermatomyositis 4 months ago, although, since for some time suffered from the symptoms. During the first two months, until q made me effect of the steroids I was not able to work. I am shaping porcelain and it was very hard because the pain in the joints of the hands was very strong. In the present work-at-home, as before, and in this way I can manage my own time. It is possible to work, but it is necessary to listen to our own body and not exederse.

3/20/17 by Natalia. Translated
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Once the condition is controlled, you can work in work which does not demand much physical effort.

8/14/17 by Anaid. Translated
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I believe that can work in any area which do not demand effort physical.

9/29/17 by Gislaine. Translated
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Work in the office, with the possibility of working at home

10/7/17 by Daniela. Translated
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in any activity

10/12/17 by alejandra. Translated

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