Celebrities with Ehlers Danlos

What famous people have Ehlers Danlos? Find out which celebrities, athletes or public figures have Ehlers Danlos.


Ehlers-Danlos Syndrome (EDS) is a group of genetic disorders that affect the connective tissues in the body. It is characterized by joint hypermobility, skin hyperextensibility, and tissue fragility. While EDS is a relatively rare condition, there are several celebrities who have been open about their diagnosis and have used their platform to raise awareness about the syndrome.



Celebrities with Ehlers Danlos Syndrome:



Lena Dunham:


Lena Dunham, the creator and star of the hit TV series "Girls," has been vocal about her struggles with EDS. She has shared her experiences with chronic pain and the challenges of living with the condition. Dunham has used her platform to advocate for better healthcare and support for individuals with EDS.



Jameela Jamil:


Jameela Jamil, known for her role in "The Good Place," has also been diagnosed with EDS. She has been open about her journey with the condition, discussing the impact it has had on her physical and mental health. Jamil has used her platform to promote body positivity and challenge societal beauty standards.



Sia:


The renowned singer-songwriter Sia has revealed that she has EDS. While she is known for her captivating performances, Sia has also faced numerous health challenges due to the condition. Despite this, she continues to create music and inspire others with her resilience.



Cher:


Cher, the iconic singer and actress, has also been reported to have EDS. Although she has not spoken extensively about her diagnosis, there have been speculations about her struggles with chronic pain and joint issues, which are common symptoms of EDS.



Other notable mentions:


While not confirmed by the individuals themselves, there have been rumors and reports suggesting that other celebrities may have EDS. These include "Game of Thrones" actress Gwendoline Christie and singer-songwriter Sinead O'Connor. However, it is important to note that these reports are not officially confirmed.



Raising Awareness and Inspiring Others:



These celebrities, along with many others who may not be in the spotlight, play a crucial role in raising awareness about Ehlers-Danlos Syndrome. By sharing their personal experiences and challenges, they help to shed light on the condition and provide support to those who may be going through similar struggles.



It is important to remember that EDS affects individuals differently, and each person's experience with the condition is unique. While some may face severe symptoms and limitations, others may have milder manifestations. Regardless of the severity, EDS can have a significant impact on an individual's quality of life.



Through their openness and advocacy, these celebrities contribute to the ongoing efforts to improve understanding, research, and treatment options for Ehlers-Danlos Syndrome. They inspire others to seek proper diagnosis, treatment, and support, while also fostering a sense of community among those affected by the condition.



If you suspect that you or someone you know may have EDS, it is important to consult with a healthcare professional for an accurate diagnosis and appropriate management. Early detection and intervention can help individuals with EDS lead fulfilling lives and minimize potential complications.



By highlighting the experiences of celebrities with EDS, we can continue to raise awareness, reduce stigma, and support those living with this challenging condition.


by Diseasemaps

Cherylee Houston, actress on Coronation Street Niccolò Paganini, violinist Many people believe Houdini had EDS, and that hypermobility would have allowed many of his tricks.

1/14/18 by stairphobe 3070

Gary turner 95% of circus contortionists

9/29/19 by Amy 13500

Sia, a famous singer Yvie Oddly, a drag queen & winner of RuPaul’s Drag Race season 11 Baroness Nicola Blackwood of the UK Sophie Hulme, British fashion designer Vanessa Wallis, para athlete who won gold for shot put at the World Para Athletics European Championship Marinda Davis, professional choreographer, star of “My Last Days” docu-series Annie Segarra, Latinx, queer, and disability advocate Kitty Richardson, English singer & songwriter

3/11/20 by MegTheMariner 1870

I know actress Jameela Jamil has it.

5/12/20 by Alex 3551

J F Kennedy and several others but that information would be private but it is suspected that several other have had it

11/19/21 by NuNu 2550

Top questions

What is the life expectancy of someone with Ehlers Danlos?

Is Ehlers Danlos hereditary?

Is Ehlers Danlos contagious?

Is there any natural treatment for Ehlers Danlos?

ICD10 code of Ehlers Danlos and ICD9 code

View more questions of Ehlers Danlos

World map of Ehlers Danlos


Find people with Ehlers Danlos through the map. Connect with them and share experiences. Join the Ehlers Danlos community.

There are 2116 people in the map. View Map of Ehlers Danlos