How do I know if I have Idiopathic Hypersomnia?

What signs or symptoms may make you suspect you may have Idiopathic Hypersomnia. People who have experience in Idiopathic Hypersomnia offer advice of what things may make you suspicious and which doctor you should go to to receive treatment


Idiopathic Hypersomnia (IH) is a neurological sleep disorder characterized by excessive daytime sleepiness (EDS) that is not alleviated by sufficient sleep at night. It is a chronic condition that can significantly impact an individual's daily functioning and quality of life.



Recognizing the symptoms:



If you suspect you may have Idiopathic Hypersomnia, it is important to pay attention to the following symptoms:




  • Excessive daytime sleepiness (EDS): Feeling excessively sleepy during the day, regardless of how much sleep you get at night. This can manifest as persistent drowsiness, difficulty staying awake, or unintentionally falling asleep in inappropriate situations.

  • Long sleep duration: Sleeping for extended periods, often exceeding 10 hours, yet still feeling excessively sleepy during the day.

  • Difficulty waking up: Struggling to wake up in the morning, feeling groggy and disoriented even after a full night's sleep.

  • Non-refreshing sleep: Despite sleeping for a long duration, individuals with IH often wake up feeling unrefreshed and continue to experience sleepiness throughout the day.

  • Cognitive impairment: Difficulty concentrating, memory problems, and reduced alertness are common cognitive symptoms associated with IH.



Seeking medical evaluation:



If you experience persistent excessive daytime sleepiness and suspect you may have Idiopathic Hypersomnia, it is crucial to consult a healthcare professional. They will conduct a comprehensive evaluation to determine the cause of your symptoms and rule out other potential sleep disorders or underlying medical conditions.



Diagnostic process:



The diagnosis of Idiopathic Hypersomnia involves:




  • Medical history: Your doctor will discuss your sleep patterns, symptoms, and medical history to gain a better understanding of your condition.

  • Sleep study: Polysomnography (PSG) and Multiple Sleep Latency Test (MSLT) are commonly used to evaluate sleep patterns, measure daytime sleepiness, and rule out other sleep disorders.

  • Elimination of other causes: Your doctor will ensure that your symptoms are not caused by other factors such as medication side effects, sleep deprivation, or underlying medical conditions.



Treatment options:



While there is no cure for Idiopathic Hypersomnia, several treatment approaches can help manage the symptoms:




  • Stimulant medications: These medications can help improve wakefulness and reduce daytime sleepiness.

  • Behavioral strategies: Implementing good sleep hygiene practices, maintaining a regular sleep schedule, and taking scheduled naps can help manage symptoms.

  • Supportive therapies: Cognitive-behavioral therapy (CBT) and counseling can assist in coping with the challenges posed by IH and improving overall well-being.



If you suspect you have Idiopathic Hypersomnia, it is essential to consult a healthcare professional for an accurate diagnosis and appropriate management. Remember, only a qualified medical professional can provide a definitive diagnosis and guide you towards the most suitable treatment options.


by Diseasemaps

See a sleep specialist and have a sleep study performed

6/6/17 by Candice 2150

I would go to your family doctor first and describe your symptoms. You would then get a sleep study prescribed and possibly then a sleep study with MSLT.

6/7/17 by Sarah 2050

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