Living with Idiopathic Subglottic Stenosis. How to live with Idiopathic Subglottic Stenosis?

Living with Idiopathic Subglottic Stenosis

Idiopathic Subglottic Stenosis (ISS) is a rare condition characterized by the narrowing of the airway passage below the vocal cords. While living with ISS can present challenges, there are several strategies and lifestyle adjustments that can help improve your quality of life.

1. Seek Medical Care

If you have been diagnosed with ISS, it is crucial to establish a strong relationship with a medical professional who specializes in airway disorders. Regular check-ups and consultations will ensure that your condition is properly monitored and managed.

2. Follow Treatment Plans

Depending on the severity of your ISS, your doctor may recommend various treatment options. These can include medication, surgical interventions, or a combination of both. It is essential to adhere to your treatment plan and follow your doctor's instructions closely.

3. Manage Symptoms

ISS can cause symptoms such as shortness of breath, hoarseness, and difficulty swallowing. To alleviate these symptoms, consider the following:

• Practice Breathing Techniques: Learn and practice breathing exercises to improve lung capacity and manage shortness of breath.


• Speech Therapy: Engage in speech therapy sessions to improve vocal cord function and reduce hoarseness.


• Dietary Modifications: Opt for softer foods and smaller, more frequent meals to ease swallowing difficulties.

4. Adopt a Healthy Lifestyle

Living a healthy lifestyle can positively impact your overall well-being and help manage ISS. Consider the following:

• Quit Smoking: Smoking can worsen symptoms and hinder the healing process. Quitting smoking is crucial for your respiratory health.


• Maintain a Balanced Diet: Consume a nutritious diet rich in fruits, vegetables, lean proteins, and whole grains to support your immune system and overall health.


• Exercise Regularly: Engage in physical activities that are suitable for your condition. Consult your doctor for appropriate exercise recommendations.


• Manage Stress: Stress can exacerbate symptoms. Practice stress management techniques such as meditation, yoga, or engaging in hobbies you enjoy.

5. Seek Support

Living with a chronic condition like ISS can be emotionally challenging. Seek support from friends, family, or support groups who can provide understanding, empathy, and encouragement. Sharing experiences and coping strategies with others facing similar challenges can be invaluable.

Remember, each individual's experience with ISS may vary, so it is important to consult with your healthcare provider for personalized advice and guidance. By actively managing your condition, seeking appropriate medical care, and making necessary lifestyle adjustments, you can lead a fulfilling life while living with Idiopathic Subglottic Stenosis.

by Diseasemaps