Which advice would you give to someone who has just been diagnosed with Lyme Disease?

Seek out a physician referral such as ILADS and find a doctor that knows HOW to help you. DO NOT rely on just any doctor. Lyme Disease knowledge is in its infancy and most doctors don't TRUELY know much about it. Even infectious disease doctors who are not ILADS doctors will most likely be dismissive or may order you the standard few weeks worth of Doxycycline. You need a doctor who can follow up with you. It could become chronic like mine, if not treated long enough. Unfortunately Lyme Disease doctors usually get paid by you and not your insurance. Until the laws are changed, it will remain an expensive illness to treat.

2/26/17 by Suzy 850

If it's within the first month....you'll be OK. ... any time after that look after your immune system, this is key to recovery

5/9/17 by Lynn 1000

DO NOT look to your regular doctor for help. It is a waste of time. Mainstream medicine has nothing to offer us. Go to an advocate for information and help. Websites like Tired Of Lyme are hugely helpful. Buy Steven Bruhner's book "Healing Lyme: Natural Healing and Prevention of Lyme Borreliosis and Its Coinfections" and read it more than once. Buy and read "Why Can't I Get Better? Solving the Mystery of Lyme and Chronic Disease " by Richard Horowitz Join Dr. Thomas Grier's facebook page and read anything he has written. He comments on an excellent microbiology report on Lyme, although old, tells you exactly how Lyme bacteria works. I tell everyone to read it. Build a team for support. People that are positive and will not tell you all is lost. Doing this alone is not an option. It is crucial to understand how lyme works, how testing is flawed, and the ins and outs of this complex disease before you decide how to begin treatment.

5/11/17 by Susan 1270

Unfortunately due to lack of knowledge with most doctors. I would recommend if it's not an early infection to find one that can treat Lyme/specialises in it. I would pass them burrascano or international guidelines on treating it. Direct them towards testing centres if they needed it. However first and foremost feeling your not alone in this is perhaps the most important to find someone that's been exactly in the same position.

5/12/17 by Lorraine 1001

Read a lot about the disease, so that you understand your body and can tell people about your disease when they ask. Maybe you can help yourself when you read a lot about it. Another advice is search for a good Lyme doctor (ILADS) or a good therapist for Lyme disease (ask other patiënts, so that you can trust that therapist). A good doctor help me, but also a new lifestyle. When you get sick, you had the wrong lifestyle... when you had a good lifestyle, you didn't get sick (immunsystem is in the gut). So search which food is good for you or not (food intolerance, allergy tests), eat healthy, stop smoking, don't take (a lot of) alcohol, have (a little) exercise every day (walk in nature) and talk with friends/family (if it is possible), the things that give you stress, put it away (if that is possible), Investigate whether you can fight radiation (if you can't, Reduce internet / phone) etc.

7/19/17 by A 800

Learn as much as you can. Read, watch videos, talk to patients who have it. Research as much as possible. Also, join the Facebook support groups that are out there. They're very helpful.

8/16/17 by Deanna 2150

Find a Lyme literate doctor, get the diagnosis but educate yourself. Western medicine is not curing anyone of this disease, it's making people feel worse. If you take anything and it makes you feel worse, stop taking it. Listen to your body.

8/29/17 by missy 2050

Educate yourself (and not just by asking a generic doctor or health care practitioner). Join online groups and forums; learn from others that have been there / are there. Don't waste your time on Infectious Disease "specialists" or other practitioners that are not Lyme-savvy. Keep a detailed journal of your symptoms including dates, duration, severity and recurrence. Know that this is a trial-and-error disorder. Be willing to try more than one thing, knowing that some will not work for you at that time (but could work at another time). Never give up, don't lose hope.

8/30/17 by S. Guthrie 2000

Take notes when you go to Dr. Detox, detox, detox

8/31/17 by Susan 800

I believe full body hyperthermia us the closest treatment we have to cure. This treatment was begun in Germany and care must be taken to avoid treatments that claim to achieve the same goals but do not. This treatment may not be right for everyone, but regardless, it is imperative to find a Lyme literate practitioner, medical or naturopathic. Support of loved ones or Kyme groups will help so much as you find your personal journey through this disease.

9/12/17 by Sheri 1100

Find a Lyme literate doctor, research their beliefs about illness and treatment, ask other people if they know anything about the practice and if feeling like it would be a good place to go for treatment make an appointment and see what their plan for your treatment would be and wether it matches what people who have progressed in treatment have told you worked for them. Look for a practice that has a variety of treatments that match your stage of illness; if you were just infected short term oral meds with regular check ins with the Doctor might be appropriate but if you have chronic long term infection with later stage symptoms than a more intensive holistic treatment with IV meds, supplements and alternative treatments like physical therapy, acupuncture and hyperbaric oxygen would be expected for the best outcome. After starting treatment be patient with yourself, follow all of the treatment guidelines and seek out people who are willing to learn about your illness and accept your diagnosis so you can have the support you need to be successful and get better.

9/15/17 by Marty 300

the best advise given to me was it is a marathon not a race and you are a turtle... the finish line will not move it just will take you a while to get there

9/29/17 by Sarah 2550

Don't get to hung on convincing anyone you have Lyme it's not important Read research connect Listen to your gut NO ONE HAS YOUR CURE you do. Try the less heroic treatments first unless your really sick but you can always move onto drugs and antibiotics There is so much in the Hetbal and supplement diet and lifestyle that can heal It's never a quick fix so appreciate progress and good days eventually there will be a lot more and remission

9/29/17 by Katrina 2000

Make dietary, cleaning and personal care changes. The more toxins removed from our environment the better.

10/1/17 by Sonya 2000

Read dr. Horowitz book, How Can I get better!

10/9/17 by Jessie 1600

Do lots of research, find an llmd as soon as possible, get away from mold and other toxins, detox and more detox vitamins and diet changes.

10/25/17 by Andrea 2120

I’d first make sure they had a Lyme literate doctor. I do referrals. I’d give them my free website so they not only have resources in several countries, I also have Lyme maps, natural protocols for those who can’t afford a doctor, and books chosen by the Lyme community. http://lymeandcoinfectionsworldwide.simpl.com

3/9/18 by Niki 8100

Check all your options for doctors, get a gofundme account because it’s expensive and insurance isn’t covered by 98% of the doctors. Next learn about the herxheimer reaction and stock up on bio freeze for pain, a heating pad, a tens unit, Alka Seltzer Gold, Benedryl, Braggs Apple Cider Vinger, Epsom Slat, a diffuser and essential oils, Sovereign Silver Colloidal Silver, and Oregan Oil. Then hold on. It’s a rough ride, but worth it

3/14/18 by Nikolettie 2700

When you are ready to talk I am here

5/26/18 by Bethany Wing 2100

Get with an experienced practitioner and work the planned treatment. Learn as much as you can without driving yourself crazy. There are lots of great FB groups to share information, but unfortunately, there are people who give misinformation and make it harder to decipher the truths.

2/1/20 by Lori 2550

That it be put in the hands of a Lyme specialist doctor, with patient associations and that he does the correct analysis because it is very important to treat yourself at the beginning of the infection

12/16/21 by José 7770

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Do not be afraid, that you modify your diet, vitamine, do not give up.

2/26/17 by Achita. Translated

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It is a struggle hard, but if you're already in the correct diagnosis, it is only not to stop the treatment. Looking for support groups in social networks and in your community. Learn from others and to support each other. Learn from your syndrome, educate yourself, the better you assemble to combat this syndrome is knowledge. Find out

2/28/17 by Leva Méndez. Translated

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contact a trained physician

3/6/17 by laurence. Translated

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That is put in the best of hands . If the infection is acute because it does not have to be any problem , any internist will give you antibiotics . If you already months have passed since the tick bite, the disease becomes chronic , in these cases should go to a specialist for lyme . There are not many in Spain but there are . In the islands there is none, although if well informed doctors .

3/23/17 by Fátima Marrero campos. Translated

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Looking for a good specialized physician with years of experience in Lyme disease and in whom you can confide in your life. I know that depending on where you live and the money you have, it's going to be very difficult, but if you can do it. On the other hand don't stop your life to heal you, you may pass enough time. Make psychological therapy that will help you understand the changes.

8/25/17 by Cecilia. Translated

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Not to be discouraged, there are other people with the disease that can help and others who claim to have cured. Science tries to provide them with the vaccine and the treatment is great and I'm sure that with a proper diet and a support psycológico be cope in better way.

9/12/17 by N6. Translated

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Don't despair everyone feels in different ways, this taken on time can have a recovery in the good, be positive and do the treatment it IS essential THAT THE FAMILY UNDERSTAND WHAT PASSES UNDERSTANDING IS WHAT IS NEEDED

9/13/17 by mora de La Plata. Translated

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that does not decay, is the start of the fight. to take forces. do everything that you tell the doctor, endure the herx. never stay quiet or leave. sooner or later you will feel the improvements, is not invincible the lyme.

9/15/17 by Emiliano Ignacio Rodriguez. Translated

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Before taking the medications, do more tests and ask for more advice from other doctors For a clear diagnosis and a treatment tangent

9/27/17 by Amparochiqui. Translated

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In France, please contact the association "The Right To Heal" and get in touch with a physician in the group "Chronimed"

9/29/17 by Julien. Translated

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stay very vigilant to the symptoms .. get in touch with a SPECIALIST OF LYME DISEASE

10/1/17 by . Translated

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If the tick bite is recent, immediately take 10 days of antibiotics, and at the same time treat the causes : a radical change of life style, leave the habits toxic (stop smoking, drinking, getting into intense emotional states, ), achieve the life of their dreams and take really good care of yourself.

10/1/17 by Marie-Pierre. Translated

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Act as soon as possible for treatment during the term and a chance of healing more safe. A doctor trained and a counselling and nutritionel Followed holistic custom

10/1/17 by Linda. Translated

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Listen, trust and confidence. Take the road to healing-by-step to accept that it's going to take time (money and frustration), because what works for one is not valid for the other. Look, remained curious, surround yourself with people with whom you can share the effects of the disease (association, social networks and groups, etc.). Document, read, go to seminars, conferences as this is where you know where to find refuge and share his experience. I would not believe the doctors who do not know anything about it to me, and I advised her to go into psychiatry, I have lost 4 years that have allowed Lyme to me colonize...

10/2/17 by Aurore. Translated

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To learn patience, to take things as they come, be strong, be courageous and above all never forget that life is made of tests, and that we will win against it.... Life is beautiful if one takes the time to watch it

10/2/17 by Yas. Translated