Can people with Primary Orthostatic Tremor work? What kind of work can they perform?

See how people with experience in Primary Orthostatic Tremor give their opinion about whether people with Primary Orthostatic Tremor can work and what kind of jobs are more appropriated for people with Primary Orthostatic Tremor


Primary Orthostatic Tremor (POT) is a rare neurological condition characterized by a rapid tremor in the legs and trunk when standing still. This tremor typically disappears when the affected individual sits down or starts walking. While the exact cause of POT is unknown, it is believed to be related to abnormal brain activity.



Living with Primary Orthostatic Tremor can be challenging, as the constant tremor can significantly impact a person's ability to perform certain tasks. However, it does not necessarily mean that individuals with POT are unable to work. The ability to work with POT largely depends on the severity of the tremor and its impact on daily functioning.



1. Flexibility in Work Environment: People with Primary Orthostatic Tremor may find it beneficial to work in environments that offer flexibility in terms of sitting and standing. Jobs that allow for frequent breaks or the use of assistive devices, such as standing desks or stools, can help manage the symptoms and improve work performance.



2. Sedentary or Desk Jobs: Individuals with POT may find it easier to perform sedentary or desk jobs that involve minimal standing or walking. These can include administrative roles, data entry, customer service, writing, graphic design, programming, and various office-based professions. Such jobs provide the opportunity to sit for extended periods, reducing the impact of the tremor on daily tasks.



3. Remote or Work-from-Home: Remote work or work-from-home arrangements can be particularly suitable for individuals with Primary Orthostatic Tremor. This allows them to create a comfortable and controlled environment where they can manage their symptoms more effectively. Remote jobs can include virtual assistance, online tutoring, content creation, software development, and many other roles that can be performed remotely.



4. Creative and Artistic Fields: People with POT often possess unique talents and abilities that can be channeled into creative and artistic fields. These professions often provide the flexibility to work at one's own pace and in a variety of environments. Examples include writing, painting, photography, music production, graphic design, and other forms of artistic expression.



5. Entrepreneurship: Starting a business or working as a self-employed individual can be a viable option for individuals with Primary Orthostatic Tremor. This allows them to have full control over their work environment, schedule, and workload. Entrepreneurship can involve various fields, such as consulting, e-commerce, online coaching, freelance work, and more.



6. Accommodations and Support: It is important for individuals with POT to communicate their needs to employers and seek reasonable accommodations. This may include adjustments to workstations, flexible schedules, the use of assistive devices, or other support measures that can help manage the tremor and improve work performance.



While Primary Orthostatic Tremor can present challenges in the workplace, it does not necessarily prevent individuals from pursuing meaningful and fulfilling careers. The key is to find a work environment that accommodates their needs and allows them to manage their symptoms effectively. It is advisable for individuals with POT to consult with healthcare professionals, occupational therapists, or vocational counselors to explore suitable career options and strategies for managing their condition in the workplace.


by Diseasemaps

Unsure of percentage that can/do work. If the job allows you to sit when needed, then work. I managed to do home health nursing before, and after my diagnosis.

12/1/21 by Marie Witham 1500

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