What is the life expectancy of someone with Relapsing Polychondritis?

Life expectancy of people with Relapsing Polychondritis and recent progresses and researches in Relapsing Polychondritis


Relapsing Polychondritis (RP) is a rare autoimmune disease characterized by recurrent inflammation of cartilage throughout the body. It primarily affects the ears, nose, joints, and respiratory system. The exact cause of RP is unknown, but it is believed to involve an abnormal immune response that mistakenly attacks healthy cartilage.



Due to the rarity of RP, there is limited data available on the life expectancy of individuals with this condition. The disease can vary widely in its severity and progression, making it challenging to provide a definitive answer. The prognosis for RP depends on several factors, including the organs involved, the extent of cartilage damage, and the response to treatment.



RP can affect multiple organs, including the ears, nose, eyes, respiratory system, heart, and blood vessels. The inflammation can lead to various complications, such as hearing loss, difficulty breathing, heart problems, and vision impairment. The severity of these complications can significantly impact life expectancy.



Early diagnosis and appropriate treatment are crucial in managing RP and improving outcomes. The goal of treatment is to control inflammation, relieve symptoms, and prevent or minimize organ damage. Medications such as corticosteroids, immunosuppressants, and nonsteroidal anti-inflammatory drugs (NSAIDs) are commonly used to manage RP. In severe cases, surgery may be required to repair or replace damaged cartilage.



RP is a chronic condition characterized by periods of remission and flare-ups. During remission, symptoms may be minimal or absent, allowing individuals to lead relatively normal lives. However, flare-ups can be unpredictable and cause significant discomfort and organ damage.



It is important for individuals with RP to receive ongoing medical care and closely monitor their symptoms. Regular check-ups, laboratory tests, and imaging studies can help assess disease activity and detect any complications early on. Adhering to treatment plans and making necessary lifestyle modifications, such as avoiding triggers and maintaining a healthy lifestyle, can also contribute to better outcomes.



While RP can be a challenging condition to manage, advancements in medical knowledge and treatment options have improved the prognosis for many individuals. With appropriate care and support, individuals with RP can lead fulfilling lives despite the chronic nature of the disease.



In conclusion, the life expectancy of someone with Relapsing Polychondritis can vary greatly depending on the individual and the severity of the disease. Early diagnosis, proper treatment, and regular medical care are essential in managing RP and improving outcomes. Although RP is a chronic condition, individuals can experience periods of remission and lead fulfilling lives with appropriate care and support.


by Diseasemaps

It depends on the are being affected. If your trachea is affected you could die if you don't get to the hospital in time. It can affect your heart as well and any other organs. No one knows how long we will live.

4/26/17 by Freya 1000

If given the correct medication and health care there is no reason to believe life expectancy is Any different. Obviously where airways are affected then this is the most life threatening

4/27/17 by Lisa Matthews (Lissy) 4800

Not sure but taking in consideration the new medicines and bilogics i believe that RP will not be a fatal dicease in the near future.

4/27/17 by Laoura 2050

No one really knows the answer to this question. There is not enough research to answer this. Medication advancements change things, so who knows. I depends on how an individuals body is coping and what areas are affected.

8/9/17 by Louise C 1450

I honestly believe something else other than RP may "get me". I didn't believe that when I was younger by the way but being almost 60, I do.

8/14/17 by Susan 2000

I have no idea. It would depend on the degree of seriousness with your RP and what areas of your body are affected. Of course, the throat is dangerous. That is probably our worst fear.

9/1/17 by Diane 2050

Not sure. They say 5 years. But I have had this diagnosis for 9 years and doing well.

6/11/19 by Brooketaylornp@gmail.com 1000

Lessened by 5-10 years with no help. Less by a few years with help

6/12/19 by Tmrcarlson 3550

The life expectancy is better now than previously reported in research papers as you will read on the internet. The highest risk with Rp is when there is tracheal or heart involvement or organ involvement like kidneys and liver. A lot of people in the support groups have reported having the disease 20+ years.

6/12/19 by Kaz 3000

I have kidney involvement at age 38, now on 1st transplant, also being affected. The research shows 10 yrs w kidney involvement

6/30/19 by Missy 100

There is no life expectancy. This disease will wax and wane

12/30/19 by Leanne 2500

It depends on what area is affected, usually good but if airways are affected it can be more problematic

12/30/19 by Carrie 3050

If you survive the first three years, you will most likely live 5 to 10. If you survive 15 years, you stand a pretty good chance of 25-35. That said, I have survived 34 since the first relapse. I hope for another 9 years.

3/20/22 by shlawver 2500
Translated from spanish Improve translation

Some articles that I read, the speech 5-7 years of survival,but in fact no one of this information. It was all very vague

10/2/17 by Ana Luiza Bottura. Translated
Translated from spanish Improve translation

You can live a long, your life does not change... only now you have to be more cautious with your body

10/2/17 by Kevin Ochoa. Translated
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With new drugs I think the life expectancy is similar to that of any person if there are no complications of the trachea or the heart

10/2/17 by Sandra. Translated

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