Can people with Syringomyelia work? What kind of work can they perform?

See how people with experience in Syringomyelia give their opinion about whether people with Syringomyelia can work and what kind of jobs are more appropriated for people with Syringomyelia


Can people with Syringomyelia work?


Syringomyelia is a rare neurological condition characterized by the formation of a fluid-filled cyst or syrinx within the spinal cord. This can lead to a range of symptoms including pain, weakness, sensory loss, and problems with coordination. The impact of syringomyelia on an individual's ability to work can vary depending on the severity of their symptoms and the nature of their occupation.



Employment possibilities for individuals with syringomyelia


Many people with syringomyelia are able to continue working, although they may need to make certain accommodations or adjustments to their work environment. The ability to work will largely depend on the individual's specific symptoms, the progression of the condition, and the physical demands of their job.



1. Office-based jobs:


Individuals with syringomyelia who experience minimal physical limitations may be well-suited for office-based jobs. These can include administrative roles, customer service, data entry, writing, or other tasks that primarily involve sitting and minimal physical exertion. With appropriate modifications such as ergonomic furniture, regular breaks, and adjustments to work schedules, individuals with syringomyelia can often perform these roles effectively.



2. Remote or flexible work:


For individuals with syringomyelia who experience more significant physical limitations or fluctuating symptoms, remote or flexible work arrangements can be beneficial. This allows them to work from home or adjust their work hours to accommodate their condition. Remote work options can include roles in customer support, virtual assistance, content creation, graphic design, programming, and other fields that can be performed remotely using a computer and internet connection.



3. Creative and artistic professions:


Individuals with syringomyelia who have a passion for creative pursuits may find fulfillment in artistic professions. These can include careers in writing, painting, photography, graphic design, music, or other forms of artistic expression. Such professions often provide flexibility in terms of work environment and schedule, allowing individuals to adapt their work to their specific needs and limitations.



4. Counseling and advocacy:


Some individuals with syringomyelia may choose to pursue careers in counseling or advocacy. Drawing from their personal experiences with the condition, they can provide support, guidance, and advocacy for others facing similar challenges. This can involve working as a counselor, therapist, support group facilitator, or engaging in patient advocacy and education.



5. Entrepreneurship:


For individuals with syringomyelia who face significant limitations in traditional employment settings, entrepreneurship can be a viable option. Starting their own business allows them to have greater control over their work environment, schedule, and physical demands. They can explore various opportunities such as online businesses, consulting, freelancing, or developing products or services that cater to specific needs related to syringomyelia or other health conditions.



6. Vocational rehabilitation:


For individuals with syringomyelia who experience more severe symptoms and struggle to continue in their previous occupation, vocational rehabilitation programs can provide valuable support. These programs aim to help individuals identify new career paths, acquire necessary skills, and make a successful transition into alternative employment options that are better suited to their abilities and limitations.



Conclusion


While syringomyelia can present challenges in the workplace, many individuals with this condition are able to work and lead fulfilling professional lives. The key is to find a suitable occupation that aligns with their abilities, accommodates their limitations, and allows for necessary adjustments. It is important for individuals with syringomyelia to communicate openly with their employers, explore available accommodations, and seek support from vocational rehabilitation services if needed. With the right strategies and support, individuals with syringomyelia can thrive in various work settings and contribute meaningfully to their chosen profession.


by Diseasemaps

This is a hard one. I am not the type of person to not do anything. I'm lucky to have a job that I only work 12 hours a week. There is no way to hold a full time job with this condition, unless you plan on calling in sick for the majority of the time.

5/22/17 by Christina Douthit 1001

Everyone is different. Many can't because of pain or motor issues

5/30/17 by Linda 900

Yes some people with Syringomyelia are able to work but most with severe symptoms are on able to do to the debilitating pain

9/9/17 by K smith 500

People with Syringomyelia can workiftheyhave astable,unsymptomatic.If the patient has pain and worsening symtoms and growing of the Syrinx. Any strenuous and vigrous work should be avoided. Fatigue makes it hard to work and repetitive movementis very hard. Working my become impossible.

10/21/17 by Lisa Charkatz 500

Not many can work, vocations are limited due to restrictions caused by Syringomyelia

3/22/18 by Tammie 4000

Depends on the person. I have been fortunate to be able to teach for 14 years in special education. However, as I am getting older , I have had to make changes in what I can and cannot teach to protect my body from injury. Stay away from following activities to protect your back: Skydiving roller coasters lifting heavy weight objects (stocking stores, moving company -related)

5/21/18 by Sue 1400

Yes I believe that people with Syringomyelia can work in any field. It progresses differently for everyone. If you listen to your body and know your limits. If you can physically and do it safely for your condition more power to you. I'm jealous of those people.

6/20/18 by Austyn 3500

I have the very worst and the most rare form of this dreaded disease and I still up until two weeks ago competed in three different forms of martial arts I boxed every Saturday with no headgear, I am a commodity Trader on the floor of the NYCE, in NYC, and as of today I still work. There are certain restrictions depending upon the exact type you have an extremity but you can still do anything and everything. As long as you have a heart.

6/24/19 by Jack 2200

As everyone’s symptoms are different their ability to work or not work will be different. I would say that since many of us are on pains meds that may limit us in some areas such as operating heavy machinery. Some may not be able to work at all.

1/17/20 by Shona 500

I’ve just lost my job as a support worker after 13 years due to deteriorating symptoms. Looking at what I can do now.

8/22/22 by Minnie78 100
Translated from spanish Improve translation

I have been 10 years with the enfermedsd and I have always worked but found that it should work on something q does not generate stress or concentration, although there are days q does not cause or get up that is why sometimes I think q should be independent

5/16/17 by María Angélica González gallon. Translated

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