Which advice would you give to someone who has just been diagnosed with Visual Snow?

See some advice from people with experience in Visual Snow to people who have just been diagnosed with Visual Snow


Advice for Coping with Visual Snow


Receiving a diagnosis of Visual Snow can be overwhelming and disconcerting. Visual Snow is a rare condition characterized by the perception of tiny flickering dots or static in one's field of vision. While there is currently no known cure for Visual Snow, there are several strategies and lifestyle changes that can help individuals manage their symptoms and improve their quality of life. Here are some important pieces of advice to consider:



1. Educate Yourself


Take the time to learn about Visual Snow and its symptoms. Understanding the condition can help you feel more in control and less anxious about the visual disturbances you experience. Research reputable sources, consult medical professionals, and connect with support groups or online communities where you can share experiences and gain insights from others who have Visual Snow.



2. Seek Medical Guidance


Consult an ophthalmologist or a neurologist who specializes in Visual Snow. They can provide a comprehensive evaluation of your condition, rule out any underlying causes, and offer personalized advice on managing your symptoms. It's crucial to work closely with a healthcare professional who understands Visual Snow and can guide you through the treatment options available.



3. Manage Stress


Stress can exacerbate Visual Snow symptoms, so it's important to find effective ways to manage stress levels. Engage in relaxation techniques such as deep breathing exercises, meditation, or yoga. Consider incorporating stress-reducing activities into your daily routine, such as taking walks in nature, listening to calming music, or practicing mindfulness. Prioritizing self-care and finding healthy outlets for stress can significantly improve your overall well-being.



4. Protect Your Eyes


Take steps to protect your eyes and minimize strain. Ensure you have proper lighting when reading or working on screens, and take regular breaks to rest your eyes. Consider using blue light filters on electronic devices, as excessive exposure to blue light can worsen Visual Snow symptoms for some individuals. Additionally, wearing sunglasses outdoors can help reduce glare and discomfort caused by bright lights.



5. Maintain a Healthy Lifestyle


Adopting a healthy lifestyle can have a positive impact on your symptoms. Eat a balanced diet rich in fruits, vegetables, and whole grains to provide your body with essential nutrients. Regular exercise can also help reduce stress and improve overall well-being. Avoid excessive alcohol consumption and prioritize getting enough sleep, as both can affect your symptoms.



6. Explore Treatment Options


While there is no known cure for Visual Snow, there are various treatment options that may help alleviate symptoms. Some individuals find relief through medications such as lamotrigine, clonazepam, or acetazolamide. However, it's important to consult with your healthcare professional before starting any medication, as they can assess the potential benefits and risks based on your specific situation.



7. Connect with Support


Living with Visual Snow can be challenging, but you are not alone. Reach out to friends, family, or support groups to share your experiences and find emotional support. Connecting with others who understand what you're going through can provide comfort and valuable insights. Online communities and forums dedicated to Visual Snow can also be excellent resources for information and support.



8. Stay Positive


Remember that Visual Snow does not define you as a person. It's essential to maintain a positive mindset and focus on the aspects of life that bring you joy and fulfillment. Engage in activities you love, pursue hobbies, and surround yourself with supportive and understanding individuals. While Visual Snow may present challenges, it's important to remain hopeful and resilient.



By following these pieces of advice, you can take proactive steps towards managing your Visual Snow symptoms and improving your overall well-being. Remember, each individual's experience with Visual Snow is unique, so it's important to find what works best for you. Stay informed, seek support, and prioritize self-care as you navigate this journey.


by Diseasemaps

Eat healthy, talk to people with the condition and educate yourself so you can know what to expect. Visual snow often gets worse as you age. This is not true for all people though.

5/9/17 by Emily 1150

Visual snow is a recent diagnosis in the medical fields. Find a competent neurologist to work with.

5/9/17 by Leonardo 2000

Seek help with the anxiety level. Also know that this is not a psychological issue but very much a dsyfunction in the brain's cortex

10/2/17 by Rrakusin 2000

Well, what do you want to do? Are you content? Do you want treatment? Seek it. Pursue it.

1/12/18 by Max 3550

-research condition -stay healthy and hydrated -don't let it affect daily life -control emotional state -be open with syndrome

3/13/18 by samanthapaige 1500

You probably think there is something critically wrong with you, it is most likely that you are not. Your brain is just messing with your vision in a very unpleasant way. Go see an eye doctor to alleviate your worries, and do your best to keep living. Each day gets easier, and you'll have your good days and your bad. Don't let this symptom from keeping you happy.

2/2/19 by Dangalangus 820

I have been to multiple Drs. who had never heard of Visual Snow so if you find a Dr. that knows about Visual Snow - keep that Dr. Also try to take note of what types of lighting and situations make your symptoms worsen. Also, try to find a facebook group or another way to connect to those who are also suffering from Visual Snow.

3/5/19 by Jessica 300

Tell them they are not alone and everything will be ok.

5/28/19 by Labnjab 2500

It's part of you now, it's not going to kill you. Just don't go sitting in a white room without distraction just to see if it suddenly dissappear, won't happen. If you got it from medication, try finding out when it happened, if you can fix it. If you got it from birth, you probably don't have the stuff in your brain that everyone has. I'm autistic so I'm sure I got some brainstuff going on.

9/3/19 by Yasmine Elsen 2500

Try to use distractions and not focus on your symptoms. Doing so will only increase anxiety and therefore increase visual snow symptoms

9/4/19 by Denali 2550

You are not alone! I like to think that this is rare but also pretty fantastic. It proves that our brains are quite amazing in how they process visual information. Ours are exceptional in this regard.

3/2/20 by Karmalita 1400

You are not alone. It is very frustrating and worrying g to have a condition that affects your vision. Also a condition that is fairly ‘new’ or misunderstood in the medical community. Most worries will be concerning vision loss over time however, some sufferers have excellent vision, no need for glasses/contacts and their vision has not deteriorated over time. Each person will have varying degrees of the condition.

9/14/21 by Kay 2670

Patients should relax and accept the fact that they cannot control that they suffer from VS. I also advise patients to find something they love and occupy themselves with it to help move on and accept VS.

3/14/22 by Khaled 3630

Try not to despair or panic, you are not going to die or become terminally ill from this condition nor will you loose your vision. Blindness is not a characteristic of VSS. There is plenty of support and information on managing your condition with everything from lifestyle advice to possible treatments you could try so all is not lost. I would recommend visiting the Visuals Snow initiative site. This was set up by a Visual Snow sufferer just like you and me and together with the support of Medical Practitioners and Medical Scientists are studying the physical mechanics of Visual Snow, Trialing new and exciting treatments together with informing doctors and patients on all things Visual Snow related. I highly recommend you check them out. Simply search Visual Snow Initiative via your internet search browser.

12/3/22 by Stuart3758 900

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