Living with Ankylosing Spondylitis. How to live with Ankylosing Spondylitis?

Can you be happy living with Ankylosing Spondylitis? What do you have to do to be happy with Ankylosing Spondylitis? Living with Ankylosing Spondylitis can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Ankylosing Spondylitis


Living with Ankylosing Spondylitis


Ankylosing Spondylitis (AS) is a chronic inflammatory disease that primarily affects the spine, causing pain, stiffness, and reduced mobility. While living with AS can be challenging, there are several strategies and lifestyle changes that can help manage the symptoms and improve your quality of life.



1. Seek Medical Care


It is crucial to consult with a healthcare professional who specializes in AS, such as a rheumatologist. They can provide an accurate diagnosis, prescribe appropriate medications, and guide you through treatment options. Regular check-ups and open communication with your doctor are essential for managing AS effectively.



2. Medication Management


Medications play a vital role in controlling AS symptoms and preventing disease progression. Nonsteroidal anti-inflammatory drugs (NSAIDs) are commonly prescribed to reduce pain and inflammation. In more severe cases, disease-modifying antirheumatic drugs (DMARDs) or biologic agents may be recommended. Adhering to your medication regimen as prescribed by your doctor is crucial for managing AS effectively.



3. Physical Activity


Regular exercise is crucial for managing AS. Engaging in low-impact activities such as swimming, walking, or cycling can help improve flexibility, reduce pain, and maintain joint mobility. It is important to consult with a physical therapist or an exercise specialist who can design a personalized exercise program that suits your abilities and limitations.



4. Posture and Spinal Care


Proper posture and spinal care are essential for individuals with AS. Maintaining good posture while sitting, standing, and walking can help alleviate pain and prevent further spinal deformities. Using ergonomic chairs, supportive pillows, and mattresses can also provide relief and improve sleep quality.



5. Heat and Cold Therapy


Applying heat or cold to affected areas can help reduce pain and stiffness. Warm showers, heating pads, or hot packs can relax muscles and joints, while cold packs or ice packs can numb the area and reduce inflammation. Experiment with both heat and cold therapy to find what works best for you.



6. Stress Management


Stress can worsen AS symptoms, so it is important to find effective stress management techniques. Engaging in activities such as yoga, meditation, deep breathing exercises, or pursuing hobbies can help reduce stress levels. Additionally, seeking support from friends, family, or joining support groups can provide emotional support and help cope with the challenges of living with AS.



7. Balanced Diet


A healthy, balanced diet is important for overall well-being and managing AS. While there is no specific diet for AS, consuming a variety of fruits, vegetables, whole grains, lean proteins, and healthy fats can support your immune system and reduce inflammation. Avoiding processed foods, sugary drinks, and excessive alcohol consumption is also recommended.



8. Adequate Rest


Getting enough rest and sleep is crucial for managing AS. Fatigue is a common symptom of AS, and proper rest can help alleviate this. Establish a regular sleep routine, create a comfortable sleep environment, and ensure you have a supportive mattress and pillows.



9. Work-Life Balance


Managing AS while maintaining a work-life balance can be challenging. It is important to communicate with your employer about your condition and discuss any necessary accommodations. Prioritizing self-care, setting realistic goals, and delegating tasks can help reduce stress and manage your energy levels effectively.



10. Stay Informed and Engaged


Stay informed about the latest research, treatment options, and self-care strategies for AS. Engage with patient advocacy groups, online forums, or support communities to connect with others who understand your experiences. Sharing knowledge and experiences can provide valuable support and help you stay proactive in managing your condition.



Living with Ankylosing Spondylitis requires a comprehensive approach that combines medical care, lifestyle modifications, and self-care strategies. By following these tips and working closely with your healthcare team, you can effectively manage your symptoms, improve your quality of life, and maintain your overall well-being.


by Diseasemaps

Exercise regularly (work with physical therapist, stretch and strengthen, go for long walks, hike if you can, practice good posture). Try to find a job that fits your body's limitations, or see if you can make adjustments at your current job. Prioritise, health being on the top of the list! Make sure you get a good sleep. Get to know your body, get to know yourself. It requires a lot of learning. And a lot of patience. Be consistent in anything you do (exercise, meditation, yoga, breathing exercises, sleep, time for work, time for family, and time to chill). It pays dividends. Stress management is very, very important, as stress can trigger inflammations and consequently you find yourself in a lot of pain. Make time for doing things you love to do. Hang out with your friends and family. Ask for help when you need one. Stay positive and learn how to live with the disease as best as you possibly can :)

3/4/17 by kat1 1050

AS can be a hear some days but you can be happy if you choose to be. You have to find a great support system as well as some small activities to keep your mind busy. Social groups are great and a place to vent when needed and always boost moral when you are down, adult coloring has become a big hit and can even be done in bad days in bed or laying down. Music therapy feels the soul with that happy hormone we all have. You have to think positive in order to overcome the bad and to be happy. Surround yourselves with positive people and people who believe, love, and support you. Without that it can be used which is why most belong to groups in Facebook and such where everyone understands their disease and can help each other out an cheer them up. Reading also helps. Basically anything to distract your mind from pain or thinking about what next. You can't live like that. It will drag you down. So always be happy, help others if even just good morning how are you? That can make some ones day more than anything. Be sure your family and friends understand your disease as well.....There sky is the limit happiness is everywhere if you allow it in!

3/5/17 by Heather 1120

Yes

5/17/17 by Shannon 1050

Proper disease management offers most folks a good quality of like. Getting the disease progression halted as early as possible is important.

5/17/17 by Keli 1050

Pace yourself don't over do it

5/18/17 by Karlie 1150

I have found a level of happiness most of the time. I did this by accepting the disease but refusing to give in to it. I try not to let it stop me from doing the things I enjoy. I have become my own expert in knowing what works for me and what doesn't.

5/19/17 by Kylie Frost 2120

Faith, persistence, attitude are important to make it through tough days!

5/19/17 by Tamra 1750

Unhappy? Apply for a medical marijuana card, visit a church, or volunteer with those less fortunate. The grass is not always greener on the other side.

7/24/17 by 1000

Do what you can, take frequent breaks, join a support group, see doctor regularly

8/31/17 by BigStu111 12832

Education and positive thinking and have a don't give up attitude.

9/6/17 by Daniel Wilson 2010

One can be happy with AS. For me to be happy with AS is to just live my life as I can. Walk around the city to avoid sitting still. On my bad days I just ask for help where I can and just relax and use my bad days for Netflix and chill as they say.

9/7/17 by Luciano Scariano 2600

I was an extremely athletic person and the affects of AS truly limited my activities. In turn I did go through the 5 stages of grief; however, once properly diagnosed and a good treatment plan, things did change for the better. I accepted my limitations and found new activities and hobbies that demanded less of me but truly enjoy...and activities where I can 'put down' for another day if feeling a flare or poorly. Lastly, a equally accepting and supportive spouse made the change complete! In the end, yes, I have bad days and rest as needed but sieze the good days!

9/10/17 by Sal 4050

By the Grace of Allah SWT Very Happy

9/21/17 by Rana Navid Anwaar Khan 3945

Bisogna accettarla Si è felici anche se si hanno forti limitazioni funZionali Si frequentano anche gruppi di sostegno psicologico

10/1/17 by Silvia 2500

Keep fighting and doing what you like and take one day at a time without forgetting where you want to go!

2/16/18 by Laeti 3570

Find a support team of friends, family, care providers or other with similiar diseases. Cry when you need to. Complain when you need to and ask for help. Expect proper pain control and dont be afraid of trying new drug therapies. Get a really good mattress and pillows, stair lift if needed and look for charities, VA and insurance to assist with costs or modifications. Learn about transportation alternatives in your area. Seek out delivery services for groceries and medications. Remember, your life is not over its just heading down a different path that can still be joyful. Do not survive, thrive!

5/31/18 by Colleen 2550
Translated from portuguese Improve translation

Many get depressed because of the disease, because it causes a lot of tiredness and the desire to do nothing, and this ends up triggering a depression. Therefore, it is important to be good to yourself, do all the necessary treatment and trying to lead the life with joy, pain you can't forget, but I try to mitigate somehow.

8/10/17 by Andressa. Translated
Translated from portuguese Improve translation

Living day to day accepting the spondylitis and exercising.

8/14/17 by Luz. Translated
Translated from portuguese Improve translation

Accept the condition of the disease, following the proposed treatment, regular physical exercise, without keeping the focus only in the disease

8/15/17 by Adriana. Translated

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