Cerebrocostomandibular Syndrome
Claire's story
Claire was born with severe micrognathia, bilateral cleft lip, and palate, rib gaps, bell-shaped thorax.
She had a tracheostomy at 3 days, cleft lip repair at 5 days, cleft palate repair at 6 months and first costocondilar graft at 1 year. Numerous surgeries followed, including the building of eye sockets and TMJ.
Find people with Cerebrocostomandibular Syndrome through the map. Connect with them and share experiences. Join the Cerebrocostomandibular Syndrome community.