Charcot-Marie-Tooth Disease prognosis

What is the prognosis if you have Charcot-Marie-Tooth Disease? Quality of life, limitations and expectatios of someone with Charcot-Marie-Tooth Disease.



Charcot-Marie-Tooth Disease (CMT) is a group of inherited neurological disorders that primarily affect the peripheral nerves, resulting in muscle weakness and sensory loss. The prognosis for individuals with CMT can vary widely depending on the specific subtype of the disease, its severity, and the age of onset.



Generally, CMT is a progressive condition that worsens over time. However, the rate of progression can be highly variable. Some individuals may experience a slow progression of symptoms over many years, while others may have a more rapid decline in function. It is important to note that CMT is not a life-threatening condition, and most individuals have a normal lifespan.



The severity of CMT symptoms can also vary significantly. Some individuals may have mild symptoms, such as slight muscle weakness or foot deformities, which may not significantly impact their daily lives. Others may experience more severe symptoms, including muscle atrophy, difficulty walking, and loss of sensation in the extremities. These individuals may require mobility aids or assistive devices to maintain their independence.



While there is currently no cure for CMT, there are various treatment options available to manage symptoms and improve quality of life. Physical therapy can help individuals maintain muscle strength and flexibility, while occupational therapy can assist with adapting to any functional limitations. Orthopedic interventions, such as braces or surgery, may be recommended to correct foot deformities or address skeletal abnormalities.



With appropriate management and support, individuals with CMT can lead fulfilling lives. It is important for individuals with CMT to work closely with healthcare professionals to develop a personalized treatment plan and to address any specific challenges they may face. Additionally, ongoing research into the understanding of CMT and potential therapeutic interventions offers hope for improved outcomes in the future.


by Diseasemaps

You can live a normal healthy life just with limitations.

5/21/18 by Joe 4050

Prognosis is usually positive. Take care of yourself and exercise. Again, each genetic code is different. Each individuals symptoms will be different.

5/22/18 by Dawn 4050

CMT is a slowly progressive disease. This means you will weaken over time, but with exercise this can be slowed. Some people may end up using a wheelchair, but few permanently. Most will need some kind of aid as they age, and as the effects of aging make their appearance, the disease can seem to worsen. It isn’t - normal aging also weakens muscles.

5/23/18 by Karencmt 2620

I expect that I will have to have another surgery when I get order. I have already had one where I had a double foot surgery one summer. This is a progressive condition but they are not sure how fast my my progress. They believe I have a different type of CMT than what they are aware of. I have to have more genetic testing done to be sure. Along with that they do not know where in my family and has came from so it might be a spontaneous account of CMT

5/23/18 by SavShelton 2550

CMT is chronic, congenital and progressive. However it affects people in different ways and to different degrees. Many CMT sufferers don't even know they have it!

5/29/18 by Daniel 4200

VARIES WIDELY. FROM NOT NOTICEABLE TO OTHERS TO SO SEVERE IT PERMANENTLY AND SEVERELY LIMITS MOBILITY. IT CAN KILL WHEN IT AFFECTS A PERSON'S ABILITY TO BREATHE WITH CERTAIN SUB-TYPES.

2/9/20 by Jim 3000

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