Stories of Charcot-Marie-Tooth Disease

STORY
Charcot-Marie-Tooth Disease stories
I was born with CMT 1a in 1966 but not officially diagnosed until 31 yrs later at Walton Neurosurgical Centre, Liverpool.   I had a Bilateral Achilles Tendon Release Op at the age of 2yrs +. at Alderhey Children's Hospital and had annual reviews...
Charcot-Marie-Tooth Disease stories
http://www.angelfire.com/mi2/chip/cmt.html
Charcot-Marie-Tooth Disease stories
I dont have CMT but both my husband and 6 year old son do.  Living and learning from the daily battles with both of them has really taught me a lot about how this disease affects and differs from each person.  To help them I am an active pa...
Charcot-Marie-Tooth Disease stories
I was diagnosed late in life and only had to stop working just over a year before i was 65 . I think what helps me that this cmt2 is so slow advancing in my case. But not knowing anyone else with cmt gives me a feeling of isolation although i have a ...
Charcot-Marie-Tooth Disease stories
Diagnosed in early 20s. Had symptoms all of my life.  

Tell your story and help others

Tell my story

View more

Charcot-Marie-Tooth Disease forum

QUESTION
Question 124
Is anyone here from Phoenix Arizona? 

Ask a question and get answers from other users.

Ask a question

View more

Statistics of Charcot-Marie-Tooth Disease

28 people with Charcot-Marie-Tooth Disease have taken the SF36 survey. Mean of Charcot-Marie-Tooth Disease is 1333 points (37 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

Charcot-Marie-Tooth Disease

Join the map