Stories of Charcot-Marie-Tooth Disease

Charcot-Marie-Tooth Disease stories
I was born with CMT 1a in 1966 but not officially diagnosed until 31 yrs later at Walton Neurosurgical Centre, Liverpool.   I had a Bilateral Achilles Tendon Release Op at the age of 2yrs +. at Alderhey Children's Hospital and had annual reviews...
Charcot-Marie-Tooth Disease stories
Charcot-Marie-Tooth Disease stories
I was diagnosed late in life and only had to stop working just over a year before i was 65 . I think what helps me that this cmt2 is so slow advancing in my case. But not knowing anyone else with cmt gives me a feeling of isolation although i have a ...
Charcot-Marie-Tooth Disease stories
I dont have CMT but both my husband and 6 year old son do.  Living and learning from the daily battles with both of them has really taught me a lot about how this disease affects and differs from each person.  To help them I am an active pa...
Charcot-Marie-Tooth Disease stories
Diagnosed in early 20s. Had symptoms all of my life.  

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Charcot-Marie-Tooth Disease forum

Question 124
Is anyone here from Phoenix Arizona? 

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Statistics of Charcot-Marie-Tooth Disease

30 people with Charcot-Marie-Tooth Disease have taken the SF36 survey. Mean of Charcot-Marie-Tooth Disease is 1306 points (36 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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