Charcot-Marie-Tooth Disease

Can people with Charcot-Marie-Tooth Disease work? What kind of work can they perform?

See how people with experience in Charcot-Marie-Tooth Disease give their opinion about whether people with Charcot-Marie-Tooth Disease can work and what kind of jobs are more appropriated for people with Charcot-Marie-Tooth Disease

Can people with Charcot-Marie-Tooth Disease work?

Charcot-Marie-Tooth Disease (CMT) is a group of inherited neurological disorders that affect the peripheral nerves, causing muscle weakness and sensory loss. The severity of CMT can vary widely among individuals, with some experiencing mild symptoms and others facing more significant challenges.

While CMT can present certain physical limitations, it does not necessarily prevent individuals from working. Many people with CMT are able to lead fulfilling professional lives by finding suitable employment that accommodates their specific needs and abilities.

What kind of work can they perform?

The type of work that individuals with CMT can perform largely depends on the severity of their symptoms and the specific limitations they may face. It is important to note that CMT affects each person differently, so the abilities and limitations can vary significantly.

Here are some factors to consider when determining suitable work options for individuals with CMT:

Physical limitations: CMT primarily affects the peripheral nerves, leading to muscle weakness and sensory loss in the extremities. This can impact dexterity, balance, and mobility. Jobs that require significant physical strength or involve prolonged standing or walking may be challenging for individuals with severe symptoms. However, many other roles that involve less physical demand can be well-suited for individuals with CMT.

Flexibility and accommodations: Employers who are willing to provide reasonable accommodations can greatly enhance the work opportunities for individuals with CMT. This may include modifications to the work environment, such as ergonomic equipment, accessible facilities, or flexible work schedules. Accommodations can help individuals with CMT manage their symptoms and perform their job tasks effectively.

Skills and qualifications: The skills, education, and qualifications of individuals with CMT are diverse, just like any other group of individuals. The specific career options available to someone with CMT will depend on their individual talents, training, and experience. Many individuals with CMT have successful careers in fields such as administration, computer programming, writing, graphic design, customer service, counseling, teaching, and various other professions that do not require extensive physical exertion.

Remote work and telecommuting: With the increasing availability of remote work opportunities, individuals with CMT can explore jobs that can be performed from home or other suitable environments. Remote work eliminates the need for commuting and can provide a more comfortable and flexible work environment, allowing individuals with CMT to better manage their symptoms while maintaining a fulfilling career.

It is crucial for individuals with CMT to assess their own abilities, consult with healthcare professionals, and consider their personal preferences when choosing a career path. Open communication with potential employers about their condition and any necessary accommodations is also important to ensure a successful work experience.

In conclusion, individuals with Charcot-Marie-Tooth Disease can indeed work and lead fulfilling professional lives. While physical limitations may exist, there are numerous career options available that can accommodate the unique needs and abilities of individuals with CMT. With the right support, accommodations, and suitable job choices, individuals with CMT can thrive in the workplace and contribute their skills and talents to various industries.

by Diseasemaps

Yes in many cases CMT Paitients can work , although they will need a job that is understanding to the limitations of the Disease

5/21/18 by Joe 4050

Yes. From home, from office, with pc!

5/22/18 by Gabriel 1700

Many people with CMT can work. So much depends on your capabilities. There are so many different severities of CMT that it depends on each individual. I would say do what you can.

5/22/18 by Dawn 4050

Yes work is possible for some No repetitive motions Limited time standing

5/22/18 by Suzie 500

Yes they can work. Anything that is seated is best, although it depends on the degree of severity

5/23/18 by Karencmt 2620

I have a very physical job that I feel is becoming increasingly difficult to continue, I believe an office desk job will be more suitable for me in the future.

5/23/18 by Darren 550

People CMT know their weaknesses. Everybody that has CMT is different. Some people may not be able to work but some people may be able to do the hardest job. It also might differ on your age and how your CMT progresses including what type you have. Personally I think that people with CMT shouldn’t have a job that Needs a lot of muscle strength or on your feet time. Even very hands-on work can be troublesome for people that have CMT. But again, everybody was CMT is different and if you believe that you can handle it, you can. I believe that probably less than half the people with Charcot Marie tooth could work in any field

5/23/18 by SavShelton 2550

Yes. Mainly non-manual work. Desk/office based jobs are preferable.

5/29/18 by Daniel 4200

Yes I work at a computer. Also I hike and go to the gym

12/8/19 by Bob 1400

Because symptoms can vary from person to person a career choice should be decided based on the individual's health and degree of symptoms. Keep in mind that this is a progressive disease and things will change. Best advice is to listen to your body and make necessary modifications to work and life as symptoms progress. Any career is possible if your body can tolerate it.

2/7/20 by Roberta 1900

Yes, they can work in any field provided it accommodates for any disability they may have.

2/8/20 by Rhonda 1300

They can work but really depends on person on length,time and position. Desk jobs that have no stairs are best. As well light duty better in mid age years. I struggle now because of my arm pain so I am on CCPD since I was 47. To say what people can work in any field is to vag just do to age and how server.

2/9/20 by Susan 600

YES, BUT WORK TYPE NEEDS TO TAKE INTO ACCOUNT CURRENT LEVEL OF DISABILITY. IT IS UNHEALTHY TO CONTINUE WORK THAT IS A POSSIBLE CAUSE OF INJURY DUE TO PHYSICAL LIMITATIONS. PEOPLE WITH ALL TYPES OF DISABILITIES ARE UNDER EMPLOYED.

2/9/20 by Jim 3000

Yes, people can work with CMT, but it becomes hard as balance, foot pain, hand deformities and exhaustion take over. It depends on how severe a person’s CMT is. There are many different types diagnosed via genetic testing. I have CMT 2 but my genetics don’t show the subtype. I’m not sure of percentage of people who work. I do not think that all types of work are easy for someone with CMT. A job where you are on your feet all day or where you lift heavy objects would not be a good field. Intelligence is not affected by CMT so jobs that require critical thinking would be good.

2/13/20 by Linda 1550

yes you can work maybe not like a healthy person but you can work

10/1/21 by Lili 900

Translated from spanish Improve translation

Without any problem in any kind of work considering the degree of the disease

9/4/17 by Lorena. Translated

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