World map of Coffin-Lowry syndrome


Find people with Coffin-Lowry syndrome through the map. Connect with them and share experiences. Join the Coffin-Lowry syndrome community.

There are 73 people in the map. View Map of Coffin-Lowry syndrome

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Coffin-Lowry syndrome stories


LAETITIA'S STORY


Bonjour mon fils sacha (4 ans 1/2)à été diagnostiqué il y a un an . Moi j'ai 36 ans et je suis porteuse de la même mutation que mon fils . Sacha à un grand frère de 8 ans qui se porte bien

Views: 639 Jan 28, 2016, 4:55 PM by Laetitia

EILEEN'S STORY


My son has coffin-lowry-syndrome  

Views: 591 Apr 4, 2016, 6:12 PM by Eileen

MY BOYS


My boys are now 14 and 4. My youngest was diagnosed first then my oldest was. My oldest is affected a little more than my youngest. Both are very loving and have a huge bond with each other. 

Views: 543 Apr 6, 2016, 1:41 PM by Vinny and Jacob

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