What is the life expectancy of someone with Dysautonomia / POTS?

Life expectancy of people with Dysautonomia / POTS and recent progresses and researches in Dysautonomia / POTS


Dysautonomia, specifically Postural Orthostatic Tachycardia Syndrome (POTS), is a complex and chronic condition that affects the autonomic nervous system. It is characterized by a range of symptoms including lightheadedness, rapid heart rate, fatigue, and fainting upon standing up. While POTS can significantly impact a person's quality of life, it is important to note that it is not typically a life-threatening condition.



Life expectancy is a common concern for individuals diagnosed with chronic conditions like Dysautonomia/POTS. However, it is crucial to understand that life expectancy is influenced by various factors such as overall health, access to medical care, lifestyle choices, and individual circumstances. Therefore, it is challenging to provide a specific life expectancy for someone with Dysautonomia/POTS.



It is important to focus on managing symptoms, improving quality of life, and seeking appropriate medical care rather than fixating on life expectancy. With proper management and support, individuals with Dysautonomia/POTS can lead fulfilling lives.



Treatment and management of Dysautonomia/POTS primarily aim to alleviate symptoms and improve daily functioning. This often involves a multidisciplinary approach, including lifestyle modifications, medication, physical therapy, and psychological support.



Lifestyle modifications play a crucial role in managing Dysautonomia/POTS. These may include:




  • Fluid and salt intake: Increasing fluid and salt intake can help maintain blood volume and improve symptoms.

  • Exercise: Engaging in a tailored exercise program, under the guidance of a healthcare professional, can improve cardiovascular fitness and reduce symptoms.

  • Dietary changes: Some individuals find that avoiding certain triggers like caffeine and alcohol can help manage symptoms.

  • Compression garments: Wearing compression stockings or abdominal binders can help improve blood flow and reduce symptoms.

  • Managing stress: Stress management techniques such as relaxation exercises, meditation, and counseling can be beneficial.



Medications may be prescribed to help control symptoms associated with Dysautonomia/POTS. These can include:




  • Beta-blockers: These medications can help regulate heart rate and reduce palpitations.

  • Fludrocortisone: This medication helps increase blood volume and reduce symptoms.

  • Midodrine: Midodrine can help constrict blood vessels and improve blood pressure.

  • Other medications: Depending on individual symptoms, other medications such as selective serotonin reuptake inhibitors (SSRIs) or serotonin-norepinephrine reuptake inhibitors (SNRIs) may be prescribed.



Physical therapy can be beneficial for individuals with Dysautonomia/POTS. It focuses on improving strength, balance, and overall physical function. Physical therapists can also provide guidance on appropriate exercise regimens.



Psychological support is essential for individuals with chronic conditions like Dysautonomia/POTS. Coping with a chronic illness can be challenging, and seeking therapy or counseling can help individuals manage stress, anxiety, and depression that may arise.



It is important to note that Dysautonomia/POTS is a highly variable condition, and its impact on individuals can vary significantly. Some individuals may experience mild symptoms that are well-managed, while others may face more severe challenges. Therefore, it is crucial for individuals with Dysautonomia/POTS to work closely with healthcare professionals to develop a personalized treatment plan.



In conclusion, while it is difficult to provide a specific life expectancy for individuals with Dysautonomia/POTS, it is important to focus on managing symptoms, seeking appropriate medical care, and improving overall quality of life. With proper management and support, individuals with Dysautonomia/POTS can lead fulfilling lives.


by Diseasemaps

POTS itself is not a life-threatening condition, even though it may not airways feel that way at times. Other comorbid conditions associated with POTS and other forms of dysautonomia can, however, lower a person's life expectancy.

4/19/17 by Nikki 2192

Pots is not life threatening.

4/27/17 by SaraW13 1050

Generally can be out grown in 20's unless there are additional factors

4/27/17 by Melissa 1100

I am not sure everyone is different and why focus on when you could die when you could live happily

8/17/17 by Miranda 2150

POTs itself is not life threatening

9/27/17 by Lbond94 4100

Hola! Somos Disautonomía Chile La misión de Disautonomía Chile es contribuir a la sociedad mejorando la calidad de vida de las personas diagnosticadas, en busca de diagnóstico, cuidadores y familias de personas con Trastornos del Sistema Nervioso Autónomo (disautonomía) e Intolerancia Ortostática en Chile. Nuestra Visión: Ser una Organización referente a los Trastornos del Sistema Nervioso Autónomo e Intolerancia Ortostática en Chile y el Mundo. Reconocida por profesionales, pacientes, autoridades y actores sociales. Con el fin de ser portavoz de la Comunidad Disautonomía Chile y expresar su problemática, plantear soluciones y ayudarlos a mejorar su calidad de vida. Nuestras redes y canales de comunicación Grupo Facebook @ DisautonomíaChileComunidad https://www.facebook.com/groups/disautonomiachilecomunidad Fan Page @disautonomiacl https://www.facebook.com/disautonomia.cl Instagram @disautonomiacl https://www.instagram.com/disautonomiacl/ Twitter @disautonomiacl https://twitter.com/Disautonomiacl Tiktok https://www.tiktok.com/@disautonomia.cl Pinterest https://www.pinterest.cl/disautonomiacl YouTube https://www.youtube.com/channel / UCC3BfJdtFhRz0hYlFHtYzuw / LinkedIn https://www.linkedin.com/in/disautonomiacl/ https://www.linkedin.com/company/69187878/admin/ Puedes escribir tus preguntas y consultas a Disautonomía Chile a la fanpage http://m.me/disautonomia.cl Accede a todas nuestras redes sociales, carpeta pública (profesionales recomendados por nuestros miembros, documento credencial de Discapacidad, entre otros) y encuestas y trabajos de investigación en: https://bit.ly/3Au7Acx

7/29/21 by disautonomia Chile 980

POTS has no impact on life expectancy other forms of dysautonomia like MSA or multiple system atrophy is terminal but a not related at all to POTS

11/25/22 by RainbowZebra32 400
Translated from spanish Improve translation

What I've reported seems to be the same as that of a healthy person.

7/5/17 by Ana. Translated
Translated from spanish Improve translation

the same as any other person

9/10/17 by Annie. Translated

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