Stories of Dysautonomia / POTS

Dysautonomia / POTS stories
Hola soy Aurora tengo 39 años, algunos conocen mis artículos pero nunca he escrito mi vida. Pues a los 17 años me diagnosticaron epilepsia, mi vida cambio, tuve que dejar la escuela por un año mientras encontraban el mejor...
Dysautonomia / POTS stories
I was diagnosed with GP in 2011 but was not helped for 4 months and it landed me in the hospital for 3 months until finally I was put on TPN and Got a feeding tube. I am now on TPN through a port. Which gives me so much more energy. I have severe Gas...
Dysautonomia / POTS stories
While I still worked as a ballet dancer and later a ballet teacher (stopped performing at age 35) my dysautonomia symptoms were easily managed, but durubf times when I did not dance they were much more pronounced.  At 32 I had a heart attack due...
Dysautonomia / POTS stories
Eu nasci com Síndrome de Ehlers-Danlos, afinal a Síndrome de Ehlers-Danlos é uma doença genética. Eu descobri que tinha Síndrome de Ehlers-Danlos aos 45 anos, por acaso. Vendo uma apresentaç...
Dysautonomia / POTS stories
I started getting extreme headaches when I was in the 9th grade. Of course back then they didn't have the technology like they have now, so on medications was my only support from the doctors.  As I got older those headaches got more worse and t...

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Dysautonomia / POTS forum

Question 104
How many of you have received the Gardasil Vaccine (HPV Vaccine) that now have Dysautonomia? 
Question 374
Anyone gets POTS after talking synthrpid or being induced with pitocin?
Question 353
I have renal damage. Hypotension may have caused it. Anyone else?

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Statistics of Dysautonomia / POTS

563 people with Dysautonomia / POTS have taken the SF36 survey. Mean of Dysautonomia / POTS is 1038 points (29 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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