Story about Dysautonomia / POTS , Endometriosis, Anxiety, Diabetes, Peripheral Neuropathy.

A Dysautonomia / POTS story

Jan 3, 2016


I was diagnosed with IST in 2012, was taking calcium blockers to try to control it and I just had to keep increasing them as they kept turning up inaffective. January 2015 I got very sick after taking a vacation. Recovered from that (virus) but never felt right again that's when everything escalated very quickly and I started blacking out. My EP cardiologist made me feel like I was crazy so I went to my general practitioner and asked for a referral to Mayo Clinic. I quit working in February my daughter had to move in with her dad because I could barely take care of myself. I went to my moms until we got into Mayo. I was there 3 weeks and had them check me for everything. Came back with the hyper POTs diagnoses as well as my IST, and I already had been diagnosed with autonomic Nueropathy endometriosis type 2 diabetes b12 defiency and am going this month to be tested for EDS and Mast Cell. I'm so grateful for my local GP and my mayo doctors they work hand in hand. My mayo doctors put me in Clonodine and Corlanor (aka ivabradine) and after being off 6 months I was able to go back to work. Still have bad flare days but my daughter is home I'm working full time and functioning. Stay hydrated, increased salt and take your meds! And compression socks!!!

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