Stories of Endometriosis

STORY
Endometriosis stories
I have suffered from hormonal problems since I was 16 yrs old (1990) but got a PCOS diagnosis at almost 35 yrs old (2008). I also have problems with my thyroid and adrenal gland. I have suffered from chronic headaches since 2000 but started getting c...
Endometriosis stories
Hello! I have Arnold Chiari type 1 and Hydrocephalus(but the new dr. says I only need to have just the internal shunt as of right now),as well as POTS,Kyphosis,vertical nystagmas and a Vit. E and Vit. D deficiency. I was diagnosed in 2009 at age 34 w...
Endometriosis stories
La endometriosis es una enfermedad que afecta física y psicológicamente a miles de mujeres y a las personas de su entorno. Hasta ahora la atención de estas se ha centrado los síntomas físicos, dejando de lado el asp...
Endometriosis stories
Tuve síntomas desde mi primer período a los 12 años me diagnosticaron, después de ver a muchos médicos y especialistas, a los 21, después de remover un quiste del tamaño de una naranja de mi ovario der...
Endometriosis stories
I've had surgery 3 times, in 2004 (when I was diagnosed), 2005 and 2007. The first and the second surgery were about take two big chocolate cysts in my ovaries (7cm and 11cm), and the third one they found a big tissue growing in the pelvic region. I...

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Endometriosis forum

QUESTION
Question 71
Ive had my appenix out & my Gallbladder out but i have pian on the lower right rib cage also have right kidney pain.. Anyone have an ideal of what could cause pain like this?? The pain goes away and comes back. Some times it can last for months o...
Question 56
Hey all, so I was six weeks pregnant back in Oct of this year , and ended up  suffering with an ectopic pregnancy, after surgery I was informed that I have endometriosis. I am 24 this month and I  luckily already have a 4 yr old. They recko...
Question 50
What is Extra peritoneal Endometriosis after Hysterectomy, why is it harder to be treated after hysterectomy when endo returning, I am not understanding why Canadian Drs are not helping me no more? Why is it we don't get help after hysterectomy and w...
Question 54
We live near Glacier National Park in Montana and are new to Endo.  We are hopeful to find resources for specialists in our local area if anyone knows of any we would be interested in checking them out.
Question 70
For the past few years I have been having pain in my right Kidney only. I've seen a Kidney/bladder Doctor he said everythings looks normal!! I saw a Endo Doctor she did a surgery she said i have Bladder (IC) and she give my meds for my bladder but i ...

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Statistics of Endometriosis

120 people with Endometriosis have taken the SF36 survey. Mean of Endometriosis is 1131 points (31 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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