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Is it easy to find a partner and/or maintain relationship when you have Dysautonomia / POTS?

People with experience in Dysautonomia / POTS give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Dysautonomia / POTS. What are the possible difficulties in having a relationship?

Couple and Dysautonomia / POTS

Is it easy to find a partner and/or maintain a relationship when you have Dysautonomia / POTS?


Living with Dysautonomia, specifically Postural Orthostatic Tachycardia Syndrome (POTS), can present unique challenges when it comes to finding and maintaining a romantic relationship. However, it is important to note that everyone's experience is different, and while some individuals with POTS may face difficulties, others may not. Let's explore some factors that can influence the ease of finding a partner and maintaining a relationship with Dysautonomia.


1. Understanding and Education:


One of the key factors in finding a partner who can support you through your journey with Dysautonomia is their understanding and education about the condition. POTS is a complex disorder that affects the autonomic nervous system, leading to symptoms such as dizziness, fatigue, and rapid heart rate. It is crucial to find someone who is willing to learn about POTS, its impact on your life, and how they can provide support.


2. Communication:


Open and honest communication is vital in any relationship, but it becomes even more crucial when one partner has a chronic illness like POTS. It is important to express your needs, limitations, and concerns to your partner. This can help them understand your condition better and find ways to accommodate your needs within the relationship.


3. Flexibility and Adaptability:


Living with POTS often means dealing with unpredictable symptoms and limitations. Finding a partner who is flexible and adaptable can make a significant difference in maintaining a healthy relationship. They should be understanding when plans need to change or when you require extra support during flare-ups or medical appointments.


4. Emotional Support:


Living with a chronic illness can be emotionally challenging, and having a partner who can provide emotional support is invaluable. They should be empathetic, patient, and willing to listen when you need to talk about your experiences, frustrations, or fears related to your condition. Emotional support can strengthen the bond between partners and help navigate the ups and downs of living with POTS.


5. Shared Activities:


Engaging in shared activities can help strengthen the bond between partners and create a sense of normalcy. While POTS may limit certain physical activities, finding hobbies or interests that you can enjoy together can be a great way to maintain a healthy relationship. This could include activities such as watching movies, playing board games, or exploring creative pursuits.


6. Seeking Support:


Connecting with support groups or online communities for individuals with POTS can provide a sense of belonging and understanding. These communities can also offer advice and insights on how others have navigated relationships while living with Dysautonomia. Seeking support from others who have similar experiences can be beneficial for both you and your partner.


7. Self-Care:


While finding a supportive partner is important, it is equally crucial to prioritize self-care. Taking care of your physical and mental well-being can positively impact your relationships. By managing your symptoms, seeking appropriate medical care, and practicing self-care techniques, you can enhance your overall quality of life and be better equipped to engage in a healthy relationship.


In conclusion, finding a partner and maintaining a relationship when you have Dysautonomia, specifically POTS, can present unique challenges. However, with understanding, open communication, flexibility, and emotional support, it is possible to build and sustain a fulfilling relationship. Remember that each person's experience is different, and it may take time to find the right partner who can support you through your journey with POTS.


Diseasemaps
8 answers
You have to find the right person. Once you find the right partner, they won't mind your POTS/dysautonomia, even if it can be difficult to manage

Posted Aug 17, 2017 by Chelsea 2335
Yes you just have to make them aware of the situation you're in.

Posted Aug 17, 2017 by Miranda 2150
Yes it is very easy to find a partner who can handle this illness along with you.

Posted Sep 28, 2017 by Lbond94 4100
Translated from spanish Improve translation
It is difficult to both find it as keep it, sometimes by fear and ignorance about this condition, it leads to turn people away. At other times the patient walks away to the couple with their negative attitude. It is advisable to talk openly about the subject, which will display information about this condition. That both support and respect. Go to a counselor, sometimes the couple is seeking help and the patient is annoyed with him because he doesn't want to tell others what you have, do not accept the disease, there comes a time that they are separated. There are cases where the two investigate, and support, go to the doctor together and carry out activities together and are adapted to the situation of the patient with Dysautonomia

Posted Jun 2, 2017 by Aurora Saez 3201
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the couple have to know and understand the condition, but you may have conflicts

Posted Jul 7, 2017 by Ana 2050
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it is very difficult to maintain it because very few people understand the severity of the disease

Posted Sep 10, 2017 by Annie 2050
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I met a person but you have POTS, I would like to continue knowing him well-but, I fear, for the things that I've read about this, for the moment does not work because they can't by the disease, I always try to give you the encouragement to continue well with your treatment but it takes five years and has not improved, and with the things I have read I think that is never going to improve, it is possible that people can control their disease and may have a normal life.? so if I think that it is very difficult, not only by the symptoms if not the is sometimes be in a bad mood and has very low self-esteem. As you do you do to maintain a good relationship and for that to work?

Posted Sep 19, 2017 by Krito 100

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