Story about Dysautonomia / POTS , Multiple Systems Atrophy.

Falling off my toes

Feb 16, 2016

By: Aletta


While I still worked as a ballet dancer and later a ballet teacher (stopped performing at age 35) my dysautonomia symptoms were easily managed, but durubf times when I did not dance they were much more pronounced.  At 32 I had a heart attack due to arrhythmia and I stopped dancing, tool office work and steadily it became worse.  as it turns out the dysautonomia was only a symptom of Multiple System Atrophy a progressive terminal neurodegenerative illness, diagnosed in 2000 and given 2-6 years I have exceeded that expiry date, don't believe everything they tell you/

https://scontent-sea1-1.xx.fbcdn.net/hphotos-xlf1/v/t1.0-0/p206x206/11129899_10153172924046067_1326750796129995299_n.jpg?oh=b1694294548cb61bfdc503378cf9f4fd&oe=5768DFEC

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Hi Aletta,  Nice to see you are still keeping on after all these years.  So much is still unknown about MSA and there are so many other disorders that mimic the symptoms. A better way to diagnose MSA and similar disorders is needed so desperately.  

Commented 8 years ago Pam Bower 2952

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